I'm doing OK, working 9 hour shifts. Cannot do the gym anymore though. The cough is uncontrollable once I start exerting myself. We're looking into that, it looks like pulmonary fibrosis . No pneumonia or infection going on, CAT scan turned up a pile of scar tissue on my lungs though (radiation/previous pneumonias).

The family is doing GREAT though. They start school on Tuesday. My daughter is looking forward to it very much, my wife... not so much

9 hours? Wow! Are you enjoying it or is it wearing you out??

That stupid radiation really did a number on you. I really think you should write something about everything you've been through. I know for ME it has been so inspiring, b/c you are never bitter about it ~something that I personally find amazing!

You know, it's funny, but I ALWAYS hated it when Devon started school - really hated it! I cried every year (unbeknowngest) to Devon, of course - but I just HATED it when he was away from me.....HE of course loved it~LOL

I got the "green" light to visit Lilli on the 10th, so I wll be in upstate /ny for a few days...gotta see my girl!

Take care of yourself!
Erin

Yeah, 8 hours plus a 1 hour unpaid lunch... so in reality 9 hours I like it a lot. We're coming into plague season around here though, I've got the ball rolling to start working from home so I can do my best to avoid the flus that will be flying around the office soon.

Radiation therapy sure did me in. Question always is was it worth it? I have to keep believing it was the right decision especially with how prone to recurrence thymomas are.

Glad you're getting a trip to see your niece Be careful and take it easy.

Colour me surprised. On Tuesday, Sep 8, I asked my family physician to get me a consult to see Dr. Nicolle. I'm seeing one of the leading experts and researchers of MG in Canada on Oct 28 I was longer than that to see a local neuro when we were first trying to figure out what was going on with me.

Hey Brian,

Wow, that was fast...good for you! Sorry to hear you are having these problems, but it looks like you'll be getting the best possible care soon. Maybe that Tia food is just around the corner! Take care and I'll be keeping good thoughts.

Hugs,
Pat

Thanks Pat.

My MG is very minor and well maintained with just Mestinon... my goal from this consult is to find out exactly how bad it is (EMG tests, etc.) and what else I can do for treatment rather than ride on maintenance. I want to be in remission

I'm very surprised at how quickly this consult moved though.

Hi Brennan, good to hear from you! Am glad you're doing all you can to see a specialist in MG, do hope you find a really good one. Keep all of us updated on your progress!! We're here for u!

I originally was given a "likely" diagnosis of MG from Dr. Bril at Toronto General Hospital. After 3 years with little change in my condition or the diagnosis, my family physician suggested I get a second opinion from Dr. Nicolle in London Ontario. Both Dr. Bril and Dr. Nicolle are acknowledged leaders in this area of neurology. Dr. Nicolle said that my tests were negative and in his opinion I did not have MG.

I found both Dr. Bril and Dr. Nicolle to be excellent neurologists and at the top of their fields. The only difference I perceived was that Dr. Nicolle was more "hands on" than Dr. Bril, doing all of the interviewing, testing etc. himself, whereas Dr. Bril has a large clinic and support staff to carry out some of these matters. Dr. Nicolle had more of an individual approach compared to Dr. Bril's team approach. Both investigations were thorough and excellent in my opinion.

I have confidence in both of these excellent neurologists and would recommend either of them. I also suggest that a second opinion always be sought when a serious medical condition is diagnosed.