For those of you in Ontario, have any of you been to see Dr. Michael W. NICOLLE in London? Or, do you know of anybody who has been to see him?

My family is on me about getting a second opinion regarding my treatment to be sure I'm getting the best possible; there are no other neuro's where I live so Ontario is the next best spot for me to be looking and I'm hearing good things about him.

Hey Brennan,

I live in Toronto. I haven't heard of this doctor, but a nurse who I had met in the hospital who had MG lived in London, so she may have seen this doctor, but I know that she was also seeing my neurologist...

I see Dr. Vera Bril at Toronto General hospital. The University healthcare network is awesome because her clinic is right across the street from the Stem cell unit, which does PLEX. She's also just a few floors up from the IViG unit...One stop shopping, so-to-speek...Is it possible for you to get to Toronto. She's an expert when it comes to MG and Diabetic neuropathy (those are her two fields).

She does a lot of studies as well. She's currently doing one on whether PLEX is better for moderate/severe MG or IViG. Maybe you could take part in a study, if you wanted...But it might be sorta far for you to travel...lol


Nicky

Distance isn't a concern. London is 2.5 hours out of Grimsby where my brother and his family live, I'd be staying there if I went to see Dr. Nicolle anyway. He's an associate prof of neurology at Western specializing in MG... my aunt in Kingston has been looking into doctors for me to see and says he comes highly recommended by other doctors who deal in MG in ON. It'd always be nice to get first hand comments from others under his care though if you know what I mean.

I live in NB, a day and a bit drive to TO anyway (or a 3 hour flight).

That's cool...I took the liberty, since I had nothing else to do...teehee, of checking out his rating on ratemds.com...He got a pretty good rating, I think a 4/5, and seems to have very good bedside manner...That's good, because not all of the neurologists have that last one

Nicky

Hi Brennan,
If you live in NB you might look into Dr McKelvey in Nova Scotia. He was my first neurologist and diagnosed me pretty much immediately. He was a bit older (and that was 5 years ago - before I moved to Scotland) so I'm not sure how active he is in research etc but he at least knew what was going on with me. He aslo referred me to a nice young neuro in Halifax to do some testing but unfortunatley I can't remember his name.

I hope you find what you are looking for! Take care,
~Kathy

Thanks for the link to www.ratemds.com.

I am currently trying to get a referral to Dr. Nicolle to see if I am on the right track with my treatment. From what I have read this doctor is very well known and is considered one of the leading "experts" on this disease. I live in Ontario and my neuro is in Hamilton. Take care and I hope you get to see Dr. Nicolle.

Maybe I will try to see this doctor too...I sometimes question my diagnosis based on the severity of my symptoms, plus, I have a lot of other symptoms that don't seem to fit the MG catagory completely...I'd like to be sure and get all of my questions answered...This doctor seems really good...my current neuro. doesn't really deal one-on-one with the patients and is very 'busy,' if you know what i mean...Check out the comments on ratemds.com, and you'll see what i mean...lol

Thanks Kathy,

I looked up Dr. McKelvey, it looks like he's another generalist like my own neuro. The intention behind all this is to be sure I've explored all treatment options; that's why I'm looking for a MG specialist. I'm currently on maintenance and not doing anything to improve the condition It'd be nice to go into complete remission though.

My family doc happily referred me to Dr. Nicolle... not sure how long I'll need to wait to see him though.

Brian

How are you feeling today?Are you still working those long hours?

I think it is so wise to explore ALL of your options - esp with this disease...........

Hope you are feeling GREAT!

Love,
ERin

How's the family?