Thanks so much for these posts to this subject. I read them a few days ago. Anyway I went to the doctor today with flu symptoms. I had to see a CNRP as my doc was gone. I tested neg for the flu but i have a severe sore throat....she wanted to give me something in the tetracyline family.....I couldn't believe it. I remembered seeing that on here and I mentioned to her that I didn't think I could take that as it might make my MG worse....she then gave me Levaquin. This is all so confusing. I really wish I could find a good primary care phys that treats ME and knows my situation instead of just prescribing whatever for me.

Thanks for the valuable info....it helped.

JCPA
My neuro had told me Cipro, & levaquin are the friendliest to people with MG. I just tried the cipro & had good luck with it. I was given a tetracyclin before from my gyn, I took 1 pill, the next morning I woke up, so weak I couldn't keep my eyes open, needless to say I didn't take another one, & my surgery had to be canceled.
Good catch !
Mary

I was just prescribed Erythromycin for a pertussis infection and after 4 days feel worse than I started. I kept feeling very tired, my ptosis was very bad yesterday, and my arms and legs feel kind of tingly-heavy. I had no idea that all that was caused by the antibiotic until I forgot to take it this morning. Felt fine, until I remembered to take it and within an hour bam, felt bad again. Now I know what it feels like to have full blown MG, instead of only ocular symptoms. I looked it up online to find out that it does interact with MG even though I was told that it wouldn't by the dr.

I have a call into them to hopefully get something else, but I am worried they may not be able to offer an alternative that works either because the medicines used to treat it are also interactive with MG. My neuro is out until Tuesday, I already tried calling there to see if she would recommend a certain antibiotic to treat it.

AMG
For an antibiotic I have had good luck with Cipro, & another some people have had is Levaquin. My Neuro had recommended both of these to try, so maybe you can mention these two & see if they could try one of them.
Good luck
Mary