 |
|
| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
| Reply |
|
|
Thread Tools | Display Modes |
09-02-2009, 11:47 AM
|
#1 | |||
|
||||
|
Senior Member
|
Hi guys! Awoke yesteray to my hema/onc telling me that myl line was being placed that day........surprised me but I have been waiting. It took about 2 hours and I was so scared that they had to heavily sedate me, but all is well!
I am on my 3rd day of IV IG and already feel better - my strength is returning - YAY! I will also have a shunt placed in my arm soon, that way I get get either IV IG or the plasma exchange monthly....... Good things are coming.......... Hope you are all feeling strong and happy! Love, ERin 
__________________
Erin . |
|||
|
 Reply With Quote
|
|
09-02-2009, 12:27 PM
|
#2 | ||
|
|||
|
Member
|
Wonderful news! Things are looking up!!
Sue |
||
|
|
Reply With Quote
|
|
09-02-2009, 01:11 PM
|
#3 | |||
|
||||
|
Member
|
Erin
So glad to hear from you! You have been in my thoughts always ! I am so happy you are feeling stronger from the IVIG. YAY is right !
__________________
Mary . |
|||
|
|
Reply With Quote
|
|
09-02-2009, 01:17 PM
|
#4 | ||
|
|||
|
Member
|
congratulations on getting the port put in! You've waited long enough.
Glad the magic juice is working, long may it continue. Love Rach xx |
||
|
|
Reply With Quote
|
|
09-02-2009, 04:09 PM
|
#5 | |||
|
||||
|
Member
|
Hey Erin,
Great news!!! I'm sure you're glad that is behind you and I'm so glad you're already feeling like you have more energy! Kendra |
|||
|
|
Reply With Quote
|
|
09-02-2009, 04:54 PM
|
#6 | |||
|
||||
|
Member
|
Congratulations, Erin, you well deserved these improvements!
I surely would'nt blow your happyness but I hope you've been given clear indications on how to avoid infections as these ports and permanent shunts are open doors to our internal system and infections could be severe… Maurice. |
|||
|
|
Reply With Quote
|
|
09-02-2009, 07:54 PM
|
#7 | ||
|
|||
|
Grand Magnate
|
That's good news, Erin. I hope it really helps.
Please be careful with the shunt. In particular, if they have to change it out. I'm not saying this to scare you, okay? When my Dad had his replaced, he died three days later of what we believe was a clot that broke off during the changing of it (cardiac arrest). He had one for dialysis. So make sure they are very careful about heparin and all that and infection precautions. It sounds like your docs are good at all that though. Annie |
||
|
|
Reply With Quote
|
|
09-03-2009, 05:50 AM
|
#8 | |||
|
||||
|
Member
|
Hope your well again today Erin, just thinking of you!
__________________
Mary . |
|||
|
|
Reply With Quote
|
|
09-03-2009, 01:14 PM
|
#9 | ||
|
|||
|
Member
|
That is good news Erin!! Now you can work on getting your energy and strength back.
|
||
|
|
Reply With Quote
|
|
09-03-2009, 05:15 PM
|
#10 | |||
|
||||
|
Member
|
Erin,
Hope all is going well with you! Hugs galore! Simon |
|||
|
|
Reply With Quote
|
| Reply |
| Thread Tools | |
| Display Modes | |
|
|
Similar Threads
|
||||
| Thread | Forum | |||
| FINALLY getting my port or shunt! | Myasthenia Gravis | |||
| A Port-hole to emotion | Survivors of Suicide | |||
| HI! I have my new Port now! | Peripheral Neuropathy | |||
| Looks like we're going for a Port not a PICC... | Peripheral Neuropathy | |||
| Had to get a port | Myasthenia Gravis | |||
Port is IN!!!!
Linear Mode
