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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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Senior Member
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Hi guys! Awoke yesteray to my hema/onc telling me that myl line was being placed that day........surprised me but I have been waiting. It took about 2 hours and I was so scared that they had to heavily sedate me, but all is well!
I am on my 3rd day of IV IG and already feel better - my strength is returning - YAY! I will also have a shunt placed in my arm soon, that way I get get either IV IG or the plasma exchange monthly....... Good things are coming.......... Hope you are all feeling strong and happy! Love, ERin ![]()
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Erin . |
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#2 | ||
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Member
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Wonderful news! Things are looking up!!
Sue |
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#3 | |||
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Member
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Erin
So glad to hear from you! You have been in my thoughts always ! I am so happy you are feeling stronger from the IVIG. YAY is right !
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Mary . |
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#4 | ||
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Member
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congratulations on getting the port put in! You've waited long enough.
Glad the magic juice is working, long may it continue. Love Rach xx |
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#5 | |||
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Member
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Hey Erin,
Great news!!! I'm sure you're glad that is behind you and I'm so glad you're already feeling like you have more energy! Kendra |
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#6 | |||
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Member
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Congratulations, Erin, you well deserved these improvements!
I surely would'nt blow your happyness but I hope you've been given clear indications on how to avoid infections as these ports and permanent shunts are open doors to our internal system and infections could be severe… Maurice. |
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#7 | ||
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Member
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OK Erin - time to turn that corner. Just keep getting stonger and stronger and remember to save some strength for the next day, then the next......
We loves ya, baby!
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Becky |
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#8 | |||
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Member
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Hi Erin,
glad you got your port, and glad the ivig is making you feel good!!!! keep taking care Kate
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Outside of a dog, a book is a man's best friend. Inside of a dog, it's too dark to read. Groucho Marx |
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#9 | |||
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Member
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Hi Erin,
I'm glad that you got your port in and that the IViG is going so well! You'll have lots of strength when you go to visit your niece, and you'll have a great time! ![]() |
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