Im not as mad at myasthenia that much these days. I havent thrown anything or cursed anyone out, not that it ever helped.(some of you people amaze me with your composure, simply incredible when I read how hard some of you get hit with this disease)
I have adjusted anything, no matter how small a task, that has become a bit more difficult with ocular version.
Driving: I dont do late afternoon appts, or any shopping. If someone expects me to be a patient of theirs, or someone needs me to assist them with anything, it has to be early. I make no exceptions, as rigid and nasty as that sounds, my comfort is very important to me.
Im lucky. I dont have small kids, my are grown and assist me, and I have a wonderful wife, although I dont think she fully understands what Im dealing with, she is there 100% for me.
Work:If my eyes go south, as it will later in the day, I will take the breaks I need. I was always very aggresive at work, staying on top of everyone and everything, not the same anymore. Id like to retire, not happenning so soon, but Ive cut my working hours down.
Hobbies, this is a place Im suffering the most. I cant participate in any sports anymore, watching them on TV sometimes gets tough, and going to live games is out of the question, Im just too uncomfortable to deal with crowds.
My woodworking is the only thing I really have left, since I was never an avid book reader, but that really strains things, and I like to come online a bit each day, when my eyes say its ok.
I limit my time with tools, and I rest often. I keep a cool room in my house all the time now, all the time, even if Im not home half a day, I make sure an AC is on and maintaining a comfortable temp in one room so I can always know I have somewhere comfortable to be.
I put a stool in my woodworking area so I can just rest and shut my eyes for a few minutes. It really helps at times.
Too much light kills me, and too little light kills me when Im trying to work on something, theres no happy medium here.
I know I only have ocular myasthenia, but lately holding a tool in my hand for a few minutes makes me feel like Im holding something heavy over my head for an extended period, and my arms just feel like falling down, so I never, ever push anymore. Not for any reason.
Stress: I still cant deal with stress, never been good with it, and still seem to have plenty of it. I think once I retire, 80% of the stress in my life will be gone.
Sleep: another area Ive suffered from for years and years, Ive always had a rough time going to bed at night. Ive tried avoiding any caffeine drinks past 5, past 3, none at all during the day, seems to have no effect on me, and I understand the risks with coffee, but Imnot giving up my 3 cups a day since it doesnt really effect my sleep as Ive experimented for months.
It is amazing how I change the tinyest things in my life. Just like brushing my teeth and shaving. Shaving and looking in the mirror is near impossble for me at times, so I allow so much more time for this.
If my eyes are tired, Ill shut them when I brush my teeth, what do I have to keep them open for anyway, but its funny the way I think about it now.
If IM watching tv, I shut my eyes during the commercials if they are feeling heavy.
I find myself laying down in a dark room so much more often these days, and my wife finds me alot sitting in the den with no lights on just sitting, not doing anything. She doesnt question it, but I explain to her it helps.
I know most of you have been through so many of these things, I just find that Im so aware of all the tiny changes Ive made that I never thought of before myasthenia, and it seems I always think of ways to ease the symptoms.
Sorry if I bored anyone to sleep, although that is a good thing I guess.

* I would like to state, that I know how bad some people have it with this disease, the incredible task it is for them to support themselves and their families, and I dont want to make it seem like my sypmtoms are all so harsh and so, but Im also suffering from this crappy disease, and Ive been such an independent aggressive personality my entire life, this is some change for me.
I spent the last 30 years worrying about having enough money to retire comfortably with my wife.
Now that worry is gone, since I dont think about vacations here and there,(once we were getting ready to retire) and nice restaurants, outings, etc. I just want to be able to get through a day without headaches and my eyes closing before Im ready to go to sleep.
Again, Id like to say I hope everyone feels a bit better these days.