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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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09-15-2009, 08:18 AM
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Hi everyone! I hope this post finds all of you strong and HAPPY!
 I just got in last night from upstate NY and it was WONDERFUL! I spent the entire time with Lilli and Maegin in the piny woods, watching all of the wildlife from the back porch - it was perfect!  The weather was perfect - 40's @ night and I would go out on the porch sans sweater and shoes watching my face deflate.......don't know how much I would love it when it gets to the -30's or so,but I now know that 40's-50's aren;t even sweater weather anymore - just perfect for me! We went to Niagra Falls yesterday - gorgeous! My aunt and uncle went with me which was a God send,k b/c there was NO WAY I could have done anything without them - they took such good care of me! I was in a wheel chair the whole time but my legs hurt like heck today! Still WELL worth it! It was sooooo hard saying goodbye to Lilli but I promised her I'd be be=ack within the next couple on months! I MISSED all of you so much! Love, Erin 
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Erin . |
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09-15-2009, 09:11 AM
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Hey Erin, Welcome back. Glad you had a good trip and visit  Did you get across the river to see the Canadian side of the falls? The horseshoe is amazing and you actually get a better view of the US falls from the Canadian side. My family was there in March and the falls were all covered in ice and the mist would freeze at night and melt through the day making some really cool crystals on the railings and buildings at the edges of the escarpment. Cheers, Brian |
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09-15-2009, 09:26 AM
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So glad to hear that you had a GREAT time. Sounds like the weather is more MG friendly for you. Maybe you should move there and then you would be within a decent driving distance for me to come and visit.
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09-15-2009, 09:39 AM
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Erin, I'm so glad you had a wonderful time! Aren't the falls just breathtaking? I'm glad you enjoyed our cooler weather. Too bad you were here just a little early for the fall foliage, but it's still pretty. You are very lucky to have such a wonderful aunt & uncle. I'm sure Lilli is already looking forward to your next visit. Take care.
 Hugs, Pat |
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09-15-2009, 09:47 AM
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So glad you had such a wonderful trip!! And especially glad that you had ENERGY!! Now take some time to do absolutely nothing so you can recharge your batteries!!
Guess you couldn't fit any cool/cold weather is your suitcase.....pity! lol Sue |
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09-15-2009, 11:29 AM
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Glad you had a great time! The falls are great!
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Cyclical Pituitary Cushing's, Addison's via bilateral adrenalectomy, Growth Hormone Deficent, Migraines, Trigeminal Neuralgia, Hashimoto's, Hypothyroid, Myasthenia Gravis? |
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09-15-2009, 01:32 PM
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Welcome Home we missed you and I am so glad you had a wonderful time, Having lived in upstate NY I can agree with you as for the beauty and the weather is perfect for those with MG.
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09-15-2009, 01:43 PM
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Hey Jen! How are YOU doing? Your mom? I tried to get my mom to tell my neuo her symptoms when I saw him a few weeks ago but she just made me out to be CRAZY - I could have throttled her!
I tell you that upstate NY is stunning! Can't wait to go back! Love, Erin Quote:
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| "Thanks for this!" says: | rumpled (09-16-2009) |
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09-15-2009, 01:48 PM
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Hey honey! I am so glad to BE back! I missed you too!
The weather was perfect! I mean perfect! I could get used to that! What have YOU been up to? Are you feeling stronger?:D May I ask why you moved from upstate NY? Was it the winter? Love, Erin Quote:
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09-15-2009, 01:53 PM
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Hey sweetie! How are YOU? Are you feeling better? Seeing Lilli was just the medicine I needed! She was such a blast! By son was waiting for me @ home, though and Mike and I were texting like TEENAGERS! LOL!
I have been a BUM all day and am loving it! LOL! I WISH I could have brought some of that gorgeous weather back with me! We'd be soooooo comfy right now! Can't wait to hear from you! Love, Erin Quote:
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I'm BACK and it was wonderful!
Hi Sue!
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