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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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09-14-2009, 07:20 PM | #11 | ||
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I loved the Oprah video too! I've lost count how many times I've watched it. Also, for me a day without music is like a day without sunshine. I also enjoy playing computer games even at the age of 57. My current favorite I recently installed is Zuma Deluxe. My husband, myself and several friends and cousins have an online tournament going on. If my eyes start bothering me, I just back off for a couple of days. It's a lot of fun and it's great for your hand eye coordination. Our last tournament that went on for months was playing Bejeweled Deluxe. Just a couple of suggestions.
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01-12-2010, 06:33 PM | #12 | |||
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Do your platelets gather at the back of your neck and under your hair on the mutitude of capilliares there. I have been getting relief by using a hand held massager with a brush attachment. I believe the problem is high blood pressure side effect. |
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01-14-2010, 10:46 AM | #13 | |||
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I have never noticed platelets gathering anywhere. Mine was DXed after a CBC where I asked them to spin the blood down. The cells came back abnormally shaped. My mom died from a blood disease in 2001 and I was concerned when I started having chronic fatigue and just not feeling quite right. I take Agrylin to reduce the platelets and have been lucky because it seems to keep them well controlled. Do you have Thrombocytosis and has your Hematologist ever said yours could turn into Milofybrosis?
Kendra |
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01-16-2010, 08:50 PM | #14 | |||
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I was a workaholic and loved solving problems I was a factory manager until I was diagnosed about five years ago with spinal stenosis which pred makes the pain go away. However of the pred now. |
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