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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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09-19-2009, 03:07 PM | #1 | |||
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Hello all! I KNOW quite a few of us are on Facebook and was wondering if any of you would like to be Facebook friends?
If you are interested @ all, PM me your info so I can look you up. My info is Erin Hermes - San Antonio Texas and I am holding my niece Lilli in the picture. I look NOTHING like I do now, so don''t be surprised! Also, someone should look into Discovery Health about our disease - maybe Annie? No one knows about it b/c there is no info out there! I would do it, but I'd sound like an idiot! Maybe, just maybe it could spread awareness! Empathy! Resources! Hope this finds all of you strong and happy! love, Erin
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Erin . |
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09-19-2009, 03:46 PM | #2 | |||
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I've been told that it is easier to find people on Facebook via email so here is my info:
erinhermes@hotmail.com
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Erin . |
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09-19-2009, 03:55 PM | #3 | |||
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Member
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Erin, I will look for you on facebook.
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09-19-2009, 07:46 PM | #4 | ||
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Hi Erin!
I've requested you as a friend. I would love to have more mg friends. It's so easy to feel isolated. I'm a little paranoid about putting my last name on this message board because I'm desperate for a job (of course I've got to get better first) and I'm scared to have my name associated with a disease like this. But if any one else is brave enough to put their facebook info out there, I'd love to be friends. Or pm me and I'll send you my info. Ally |
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09-19-2009, 08:21 PM | #5 | |||
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Junior Member
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Erin
I sent you a private message with my name. I will send you a friend invite! |
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09-20-2009, 02:04 AM | #6 | ||
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Member
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Ive just found you and requested you as a friend!
Love Rach |
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09-20-2009, 10:44 AM | #7 | ||
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Member
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Hey all, feel free to add me.. Email, stormchaser1963@aol.com or look me up on facebook... Joan Trivette
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09-20-2009, 04:58 PM | #8 | |||
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Member
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Joan, I sent a friend request to you on facebook.
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09-21-2009, 03:59 PM | #9 | ||
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Junior Member
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Erin and Joan;
I've requested to be friends with both of you on Facebook. You all can find me at slwhitehead@juno.com. Shannon |
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"Thanks for this!" says: | DesertFlower (09-23-2009) |
09-21-2009, 06:11 PM | #10 | |||
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Member
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Hey guys,
You can add me too...Don't mind some of the pictures I have posted up...My sister posted some crazy pictures of me acting goofy when I was a kid...lol...I'm not insane, I swear...Well, maybe a bit lol Last edited by mrsD; 02-08-2010 at 07:05 AM. Reason: removing private info per poster's request |
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"Thanks for this!" says: | DesertFlower (09-23-2009) |
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