Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 09-28-2009, 06:43 PM #21
scarpettafan scarpettafan is offline
Junior Member
 
Join Date: Jun 2009
Location: Missouri
Posts: 50
15 yr Member
scarpettafan scarpettafan is offline
Junior Member
 
Join Date: Jun 2009
Location: Missouri
Posts: 50
15 yr Member
Default

So happy that the low-dose mestinon is working for you.
scarpettafan is offline   Reply With QuoteReply With Quote

advertisement
Old 09-28-2009, 07:12 PM #22
JCPA's Avatar
JCPA JCPA is offline
Junior Member
 
Join Date: Aug 2009
Location: South Ga Girl
Posts: 85
10 yr Member
JCPA JCPA is offline
Junior Member
JCPA's Avatar
 
Join Date: Aug 2009
Location: South Ga Girl
Posts: 85
10 yr Member
Default

Hi Joan
Glad you are tolerating the Mestinon. I know you are glad.

Also to add about Mestinon, don't separate them out (like in a daily pill box) either. I actually was taking mine out and putting them in on of those weekly pill boxes for the week. I noticed that the mestinon was trying to crumble some and my pharmacist said that they need to be left in the pill bottle with one of those moisture thingy's (I'm pretty sure there is a fancier name for it). The pills can crumble to nothing so now I only count out for one day or two.!!

JCPA is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DesertFlower (09-28-2009)
Old 09-29-2009, 06:33 AM #23
suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
15 yr Member
suev suev is offline
Member
 
Join Date: Jun 2009
Location: Texas
Posts: 748
15 yr Member
Default

Mestinon is very adversely effected by sunlight (pretty much light period) and moisture. The pills shoud be in an amber or opaque container in a cupboard out of the kitchen or bathroom. This is particularly important if you cut them for smaller dosages. The little devils just love to take on moisture and then crumble apart! I haven't put one of the moisture thingy's in (I don't know the fance name either!), but I think that's a great idea.

Sue

Last edited by suev; 09-29-2009 at 06:35 AM. Reason: missing info
suev is offline   Reply With QuoteReply With Quote
Old 09-29-2009, 08:09 AM #24
Pat 110 Pat 110 is offline
Member
 
Join Date: May 2009
Posts: 586
15 yr Member
Pat 110 Pat 110 is offline
Member
 
Join Date: May 2009
Posts: 586
15 yr Member
Default Thingy

Hey ladies, maybe if we ask the pharmacists for a couple of 'thingys', he or she will give them to us. Worth a try. Pat
Pat 110 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
suev (09-29-2009)
Old 09-29-2009, 09:37 PM #25
JCPA's Avatar
JCPA JCPA is offline
Junior Member
 
Join Date: Aug 2009
Location: South Ga Girl
Posts: 85
10 yr Member
JCPA JCPA is offline
Junior Member
JCPA's Avatar
 
Join Date: Aug 2009
Location: South Ga Girl
Posts: 85
10 yr Member
Default

Hey
Speaking of those "thingys" heehee! Since so many of us here can't work alot....let all MG'ers gather our resources together and invent and patent our own small size thingy to go in the pill day of week containers!
Think of how rich.... we all can be!! Ha!
JCPA is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
suev (09-29-2009)
Old 09-30-2009, 11:32 AM #26
Joanmarie63 Joanmarie63 is offline
Member
 
Join Date: Mar 2009
Location: Western North Carolina
Posts: 468
15 yr Member
Joanmarie63 Joanmarie63 is offline
Member
 
Join Date: Mar 2009
Location: Western North Carolina
Posts: 468
15 yr Member
Default

LOL about the "thingy" My husband gets them in one of his meds and I always kept them.. I don't know why but I did and now I use them with the mestinon. I have learned years ago about the moisture so I keep them in my bedroom dresser draw.
Joanmarie63 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
JCPA (09-30-2009)
Old 09-30-2009, 10:27 PM #27
SharS SharS is offline
Junior Member
 
Join Date: Jun 2009
Location: Tennessee
Posts: 58
15 yr Member
SharS SharS is offline
Junior Member
 
Join Date: Jun 2009
Location: Tennessee
Posts: 58
15 yr Member
Default

I'm glad to hear you all talk about the moisture problem with Mestinon. I kept wondering what I was doing with my pills to make them crumble!
__________________

.
Sharman
SharS is offline   Reply With QuoteReply With Quote
Old 10-01-2009, 08:06 AM #28
Pat 110 Pat 110 is offline
Member
 
Join Date: May 2009
Posts: 586
15 yr Member
Pat 110 Pat 110 is offline
Member
 
Join Date: May 2009
Posts: 586
15 yr Member
Default

Shar, I thought the same thing years ago. I put one in my jean pocket and when I went to take it, it was dissolved! Pat
Pat 110 is offline   Reply With QuoteReply With Quote
Old 10-01-2009, 11:38 PM #29
redtail's Avatar
redtail redtail is offline
Member
 
Join Date: Jun 2007
Location: western australia
Posts: 894
15 yr Member
redtail redtail is offline
Member
redtail's Avatar
 
Join Date: Jun 2007
Location: western australia
Posts: 894
15 yr Member
Default

I carry my mestinon around in a tiny pill container in my pocket, so as I remember to take the daytime ones. When I use to work, I would forget and only remeber when I was holding my head back so I could see. Keeping them in my pocket helped remind me.
__________________


Outside of a dog, a book is a man's best friend.
Inside of a dog, it's too dark to read.
Groucho Marx
redtail is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 07:19 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.