So sorry Erin !
My MG has been out of control for a long time also, sucks when the drugs don'y seem to hold it back, & scary ! The IVIG doesn't last for me either , so expensive, & works a few weeks. Maybe this round will stick?
Hopeful
Mary

Going back to the hospital
 

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Hi Erin,
I am so sorry to hear you're heading back to the hospital. Darn this MG!!! Try not to worry about your family. They love you and I'm sure their reaction is pure fear. As much as I love my husband his reaction to things sometimes makes me think he is mad at me when I know he just doesn't know how to cope or express how he's feeling. My 16 year olds only concern is am I going to die. I know you have a teenage son and those are tough years. My mom became ill when I was 17 and I remember thinking how unfair it was that while everyone else was out with their moms doing things mine was so sick. It broke my heart for her. Try to worry about YOU right now and let God worry about everything else!!!You are one tough Texas girl and I admire your strength so much. You are always there to root on everyone else even when you're having problems of your own. You're a true blessing to this forum:smileypray. I know you're messages have certainly helped me. You will be in my prayers:smileypray:

Erin, so sorry you have to be back at the hospital! I'm hoping you'll get lovely nurses and good care there, and the Ivig will make you feel better! My neuro is also pushing for ivig for me, and I've read that I'll need at least 6 infusions a week to feel better, and have to continue it else my progression will continue. So I'm also in a fix, don't know to do it or not. *hugs babe*