Hey guys,

I've been reading some really interesting things about this drug. It's a drug that was originally intended for people with heroin and alcohol addictions. It works by blocking the endorphins that are released in association with the drug use. Anyway, apparently, in lower doses, it works by blocking the release of those endorphins for only a few hours which in turn causes more endorphins to be created. Somehow this affects the immune system in a very positive way, 'restoring' it to normalcy. It's being used for cancer, MS, crohn's, Fibromyalgia, CFS and ALS patients. It seems to be very successful for people with MS.

This seems to sorta change the paradigm that we need to suppress the immune system instead of 'restore' it.

Has anyone heard of this drug? I only really started looking into it today, but I'd be curious to know if anyone has talked to their neuro. about it.

It sorta reminds me of this herb I was taking right before my MG symptoms became prominent, back in December. It was called moducare, and supposedly worked by restoring the balance between T3 and T4 cells. I stopped taking it because I thought that it was making me worse (which it prolly was). Apparently, these types of medicines can temporarilly make symptoms worse prior to getting better, like prednisone, I guess, but for different reasons.

Here is a video I found of a doctor who has been using it for Pancreatic cancer patients with a lot of success. The video also talks about ALA, vitamin D and autoimmune diseases...

http://www.youtube.com/watch?v=FRI5f...eature=related

Hope you're all feeling well!
Nicky

I have never heard of it, but it sounds like something to look into

Hey guys,

I came across a person with MG who has been using LDN for a year but didn't find that it helped with their MG symptoms, but did help with sleeping problems...But it might work for others...I'll keep you posted as I'm going to keep looking into it.

Nicky

Nicky, I wish they would do a study about MG and this drug. Because of its NK (natural killer cells) boosting I wonder if it would be good or bad for lupus. It's worth bringing up to your neuro, if they are open-minded!!!!

Your mind works like mine does. Always thinking, always reading.

Annie

http://autoimmunedisease.suite101.co...trexone_update


You guys with fibromyalgia might find this interesting.

http://www.ncbi.nlm.nih.gov/pubmed/1...ubmed_RVDocSum

http://www.ncbi.nlm.nih.gov/pubmed/1...ubmed_RVDocSum

http://www.ncbi.nlm.nih.gov/pubmed/1...ubmed_RVDocSum

Tons of info is on the site at www.lowdosenaltrexone.org

I am trying it for... MG and/or Fibro and/or whatever it is that I have. Whatever I have I think it's related to my immune system not working in the right way.

I've read that a bunch of people couldn't convince their doc to prescribe it for them. If you can, it seems worth a try. Side effects are generally no big deal.