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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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09-28-2009, 10:05 AM | #1 | ||
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Glad you are out of the hospital. I hope that you are starting to feel better and that the MG gives you a bit of time off (for good behaviour LOL)
Love Rach |
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"Thanks for this!" says: | Pat 110 (09-28-2009) |
09-28-2009, 10:25 AM | #2 | ||
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Thanks Rach and for the laugh too! I sure don't miss having the shots of blood thinners injected in my stomach and abdomen. I have 4 bruises the size of grapefruits. I hope you are feeling better. I still have so many posts to read yet, but I'm getting there. Take care.
Hugs, Pat |
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"Thanks for this!" says: | rach73 (09-29-2009) |
09-28-2009, 11:23 AM | #3 | ||
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Wow Pat, you sure have been through it. I am glad you are home and it wasn't a heart attack or colapsed lung. {thats what I was thinking as I started reading your post} Now that you are home I am sure your strength will start returning.
Big |
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"Thanks for this!" says: | Pat 110 (09-28-2009) |
09-28-2009, 12:38 PM | #4 | ||
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Thanks Joanmarie, It sure feels good to be home. I have to admit I was scared when it happened. First time in my life I actually asked to be taken to the ER! With all the tests I had, you would think they would know for certain if I had a heart attack or 'threw a clot' as they call it. But, the cardiologist is just not convienced. Maybe after I have the nuclear stress test in a month, he'll be convienced. I'm glad he's covering all the bases. I'm 57 with a strong family history of heart disease. My Dad had heart surgery in his 40's and died at 59 and my Mom had TIA's in her early 50's and a heart attach & stroke at 59, but lived to be 77. Well, didn't mean to ramble. See what happens when I'm not on the forum for a while. lol Take care.
Hugs, Pat |
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09-28-2009, 12:42 PM | #5 | |||
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Hey Pat,
I'm so sorry for your ordeal- that must have been very scary! I know exactly what you mean about the blood thinners...I had to take those too and it took forever for the hideous bruises to go away! I'm glad that you're feeling a bit better now that you're out of the hospital- the hospital sucks! By the way, how long have you been taking lipitor? Statins can be bad for people with neuromuscular diseases...They deplete the body of co Q10...Co Q10 normalizes BP and promotes healthy heart function...Maybe you can ask your doc. if you can take this as a supplement...A supplement that's good for cholesterol is indole 3-carbinol...It's made from cruciferous veggies (brocolli, cabbage, etc.). It has anti-cancer properties (by ridding the body of excess 'bad' estrogen), is good for the immune system and it lowers cholesterol. They've done studies on it and it really works. Anyway, sorry for all the info.. I just hope that you feel better very soon! Nicky |
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"Thanks for this!" says: | Pat 110 (09-28-2009) |
09-28-2009, 12:55 PM | #6 | ||
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Thanks Nicky! I've been taking 10mg of Lipitor for about 7 years now. I didn't know it depletes the body of co Q10. I'll have to talk with my Dr. about that. Thanks for all the good info. Weren't the bruises from those shots huge & ugly! lol Take care.
Hugs, Pat |
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09-28-2009, 01:16 PM | #7 | ||
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So glad that you are home Pat. Scary stuff!! Hope that you are getting stonger and no more overnight visits to the hospital. Nobody likes being in the hospital right? Take care ~ Melanie
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"Thanks for this!" says: | Pat 110 (09-28-2009) |
09-28-2009, 01:30 PM | #8 | |||
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Hey Pat,
7-years is a very long time! Oh boy! Enough people have developed Lou Gehrig's disease, MG and Parkingson's disease after taking statins that those medications are contraindicated for people with these problems. I'm not sure if they cause these problems because they prevent the body from making coq10 (which is important for proper muscle function, so that would make sense) or if it's related to the rapid decrease in cholesterol (which is important for proper nerve function). If a person is low on coq10, there is an increased risk of heart attack. So the very thing that the statins are supposed to prevent would end up increasing the risk for. I'd definately ask the doc. if you can add coq10 as a supplement for now, then maybe see if you can stop taking the lipitor. Plant fats are very good for balancing out cholesterol. They also have plenty of other good side-effects like good immune function and a decreased risk of hormonal cancers. Nicky |
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