Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 09-28-2009, 10:05 AM #1
rach73 rach73 is offline
Member
 
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
rach73 rach73 is offline
Member
 
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
Default hi Pat

Glad you are out of the hospital. I hope that you are starting to feel better and that the MG gives you a bit of time off (for good behaviour LOL)

Love
Rach
rach73 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Pat 110 (09-28-2009)
Old 09-28-2009, 10:25 AM #2
Pat 110 Pat 110 is offline
Member
 
Join Date: May 2009
Posts: 586
15 yr Member
Pat 110 Pat 110 is offline
Member
 
Join Date: May 2009
Posts: 586
15 yr Member
Default

Thanks Rach and for the laugh too! I sure don't miss having the shots of blood thinners injected in my stomach and abdomen. I have 4 bruises the size of grapefruits. I hope you are feeling better. I still have so many posts to read yet, but I'm getting there. Take care.

Hugs,
Pat
Pat 110 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
rach73 (09-29-2009)
Old 09-28-2009, 11:23 AM #3
Joanmarie63 Joanmarie63 is offline
Member
 
Join Date: Mar 2009
Location: Western North Carolina
Posts: 468
15 yr Member
Joanmarie63 Joanmarie63 is offline
Member
 
Join Date: Mar 2009
Location: Western North Carolina
Posts: 468
15 yr Member
Default

Wow Pat, you sure have been through it. I am glad you are home and it wasn't a heart attack or colapsed lung. {thats what I was thinking as I started reading your post} Now that you are home I am sure your strength will start returning.

Big
Joanmarie63 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Pat 110 (09-28-2009)
Old 09-28-2009, 12:38 PM #4
Pat 110 Pat 110 is offline
Member
 
Join Date: May 2009
Posts: 586
15 yr Member
Pat 110 Pat 110 is offline
Member
 
Join Date: May 2009
Posts: 586
15 yr Member
Default

Thanks Joanmarie, It sure feels good to be home. I have to admit I was scared when it happened. First time in my life I actually asked to be taken to the ER! With all the tests I had, you would think they would know for certain if I had a heart attack or 'threw a clot' as they call it. But, the cardiologist is just not convienced. Maybe after I have the nuclear stress test in a month, he'll be convienced. I'm glad he's covering all the bases. I'm 57 with a strong family history of heart disease. My Dad had heart surgery in his 40's and died at 59 and my Mom had TIA's in her early 50's and a heart attach & stroke at 59, but lived to be 77. Well, didn't mean to ramble. See what happens when I'm not on the forum for a while. lol Take care.

Hugs,
Pat
Pat 110 is offline   Reply With QuoteReply With Quote
Old 09-28-2009, 12:42 PM #5
Nicknerd's Avatar
Nicknerd Nicknerd is offline
Member
 
Join Date: May 2009
Location: Toronto, Canada
Posts: 547
15 yr Member
Nicknerd Nicknerd is offline
Member
Nicknerd's Avatar
 
Join Date: May 2009
Location: Toronto, Canada
Posts: 547
15 yr Member
Default

Hey Pat,

I'm so sorry for your ordeal- that must have been very scary! I know exactly what you mean about the blood thinners...I had to take those too and it took forever for the hideous bruises to go away!

I'm glad that you're feeling a bit better now that you're out of the hospital- the hospital sucks!

By the way, how long have you been taking lipitor? Statins can be bad for people with neuromuscular diseases...They deplete the body of co Q10...Co Q10 normalizes BP and promotes healthy heart function...Maybe you can ask your doc. if you can take this as a supplement...A supplement that's good for cholesterol is indole 3-carbinol...It's made from cruciferous veggies (brocolli, cabbage, etc.). It has anti-cancer properties (by ridding the body of excess 'bad' estrogen), is good for the immune system and it lowers cholesterol. They've done studies on it and it really works.

Anyway, sorry for all the info.. I just hope that you feel better very soon!

Nicky
Nicknerd is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Pat 110 (09-28-2009)
Old 09-28-2009, 12:55 PM #6
Pat 110 Pat 110 is offline
Member
 
Join Date: May 2009
Posts: 586
15 yr Member
Pat 110 Pat 110 is offline
Member
 
Join Date: May 2009
Posts: 586
15 yr Member
Default

Thanks Nicky! I've been taking 10mg of Lipitor for about 7 years now. I didn't know it depletes the body of co Q10. I'll have to talk with my Dr. about that. Thanks for all the good info. Weren't the bruises from those shots huge & ugly! lol Take care.

Hugs,
Pat
Pat 110 is offline   Reply With QuoteReply With Quote
Old 09-28-2009, 01:16 PM #7
rezmommy rezmommy is offline
Member
 
Join Date: Nov 2008
Location: Ontario, Canada
Posts: 189
15 yr Member
rezmommy rezmommy is offline
Member
 
Join Date: Nov 2008
Location: Ontario, Canada
Posts: 189
15 yr Member
Default

So glad that you are home Pat. Scary stuff!! Hope that you are getting stonger and no more overnight visits to the hospital. Nobody likes being in the hospital right? Take care ~ Melanie
rezmommy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Pat 110 (09-28-2009)
Old 09-28-2009, 01:30 PM #8
Nicknerd's Avatar
Nicknerd Nicknerd is offline
Member
 
Join Date: May 2009
Location: Toronto, Canada
Posts: 547
15 yr Member
Nicknerd Nicknerd is offline
Member
Nicknerd's Avatar
 
Join Date: May 2009
Location: Toronto, Canada
Posts: 547
15 yr Member
Default

Hey Pat,

7-years is a very long time! Oh boy!

Enough people have developed Lou Gehrig's disease, MG and Parkingson's disease after taking statins that those medications are contraindicated for people with these problems. I'm not sure if they cause these problems because they prevent the body from making coq10 (which is important for proper muscle function, so that would make sense) or if it's related to the rapid decrease in cholesterol (which is important for proper nerve function).

If a person is low on coq10, there is an increased risk of heart attack. So the very thing that the statins are supposed to prevent would end up increasing the risk for.

I'd definately ask the doc. if you can add coq10 as a supplement for now, then maybe see if you can stop taking the lipitor. Plant fats are very good for balancing out cholesterol. They also have plenty of other good side-effects like good immune function and a decreased risk of hormonal cancers.

Nicky
Nicknerd is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AnnieB3 (09-28-2009), Pat 110 (09-28-2009)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Home from Hospital BJ Survivors of Suicide 10 09-01-2008 04:30 AM
Home from hospital & rehab Friend2U Multiple Sclerosis 12 07-30-2008 08:32 PM
Home from hospital momzpeachy Thoracic Outlet Syndrome 17 01-22-2008 03:20 PM
Home from hospital Cherie Multiple Sclerosis 40 11-10-2006 07:06 PM


All times are GMT -5. The time now is 03:08 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.