Erin,
Yes I am having the single fiber test too. I had a feeling that involved a needle! Oh boy, I'm not looking forward to this at all but am glad it should be a one time only test.
I am soooo glad to hear they started you on meds right after the results. I am hoping to see results quickly too. I am glad you found that the meds worked amazingly! This probably sounds ridiculous but I am so hopeful this helps the ptosis too. I can't wait to put on eye make up again!
Thanks so much for the thoughts and prayers!

Annie,
I appreciate your honesty. As much as I was hoping for no pain I at least know now what I am walking into. I'll make sure and have the Kleenex handy.
I'm not sure which type of antibodies the testshowed. The nurse called and said that they were positive. She didn't go into any detail and I honestly didn't know there were different types. I will ask that when I go Thur. Thanks again.
Kendra

Hi Kendra
My neuro wrote my prescription that very day. I tested positive for the blood test first and then 4 days later she performed the nerve tests. I tested positive for both of those and she wrote my prescription that day. I got it filled the next day and started on it. Great day....the difference was amazing.....I told my husband....I've got my life back....Hey I can move and walk...whoohooo!

I wonder why your doc hasn't tried you on mestinon...at least to see if there any improvements on it?

JJ

Hi JJ,
I am sooo glad to hear that you started meds the same day!!! I am keeping my fingers crossed that they will write me a scrip tomorrow. I am so anxious to see how much better I feel once I start it. Several people have mentioned how amazing the difference was. As much as I am dreading the EMG tsts I just keep telling myself I am that much closer to starting the meds. I'm not sure why he hasn't started me on meds. I asked his nurse that when I was there before and she said she thought it was because Mestinon can interfere with the results of the EMG tests and he likes to have that done before starting anything. As much as I understand that I have been waiting a month for these tests! You would think they could schedule things a little faster so people can starts meds. Oh well I guess in the medical world 30 days is nothing. Thanks so much for the encouraging news!
Kendra

I find it weird that your neuro. didn't start you on mestinon right away, even before the tests....The first neuro. I saw was so sure I had MG after seeing him the first time, that he gave me a script right away and then referred me to an MG specialist...Then again, I was sorta freaking out...lol...I was so upset by the speech issues I was having, and plus my job required me to talk on the phone all day, so maybe he felt pity on me...I was a serious bundle of nerves when I saw him...

Hopefully, you will get your script right away after these tests...

I found that the SFEMG wasn't very painful at all...They put it in my forehead...The Repetitive stimulation test was another story, though....It was really irritating, and my face felt twitchy for the rest of the day...But it wasn't that bad, so don't worry!

Nicky