FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
Reply |
|
Thread Tools | Display Modes |
|
10-02-2009, 09:42 AM | #1 | ||
|
|||
Member
|
As my facebook friends on here know I had a rough couple of days, I will explain it all now that I can.
On Wedsnday night my husband called for me and when I got downstairs to him he was pale and pouring sweat, he started praying and told me he was dying, in the middle of praying he "crashed" no pulse, no breathing. My husband is a big man and although I didn't have the strength to get him to the floor I did have the strength to beat him up..LOL as I was on the phone with 911 I kept beating on his chest and I was able to bring him back, I ran upstairs to await the E.M.S. and then ran back downstairs to find he "crashed" again, again I beat on him {every wifes dream to be able to beat their husband and not get yelled at LOL} at that time the E.M.S. pulled him to the floor and continued C.P.R. we got him back, again. Turns out he has a kidney stone so large it has caused one kidney to shut down and the swelling was so bad it cut off the use of his bladder and he went into shock as he started going septic. The V.A.Hosp was wonderful, husband is home today but we need to return to the V.A. next week for possible surgery {because stone is way to large to pass, or to "break up"} If it wasn't for me starting back on the mestinon I never would have had the strength to do what I did that night and my husband would not be with me today, so although I was upset about starting back on mestinon, it turned out it saved my husbands life! So I guess I am saying that, when we get things thrown at us, there is always a reason, even if at the time it doesn't feel right it winds up that there is a reason for it. THANK YOU to all my facebook friends that sent prayers and left such kind words for me! |
||
Reply With Quote |
10-02-2009, 09:54 AM | #2 | |||
|
||||
Member
|
Joan Marie,
Your story gave me chills!!! It is so very touching and I truly admire your positive outlook! My attitude has not been good the last couple of days and your posting has put things back in perspective for me. This just proves that God has a plan for everyone even if we don't understand it at the time. I am so glad your husband is going to be ok. Thanks for the posting and my prayers are with you and your husband! Kendra Quote:
|
|||
Reply With Quote |
10-02-2009, 10:05 AM | #3 | ||
|
|||
Member
|
Kendra,
That is why I posted it, because I know how we get upset with our illness and lack of strength and we feel "useless" at times but I felt I needed to share that we are NOT useless that just because we have MG we are still able to live! And even though I have been down lately the other night made me realize just how important we all are. |
||
Reply With Quote |
10-02-2009, 10:19 AM | #4 | ||
|
|||
Member
|
Joan,
Our world is so full of wonder and amazement. I am still thinking about you and your hubby. Even though I don't "know" you and we have not been "friends" for very long I am deeply touched by your situation. When I read your initial post on FB I started to panic because I knew that you had just started on Mestinon and I was concerned whether you would have enough strength to carry you through this stressful time. I am so happy that you and your hubby are ok, thank goodness for mestinon. Take care ~ Melanie |
||
Reply With Quote |
10-02-2009, 10:20 AM | #5 | |||
|
||||
Member
|
Joane Marie,
I am so glad you did post this! I have been so depressed since leaving the Dr. yesterday and feel like I have had the wind knocked out of me. I need to get a grip! I always try to look at the bright side of things but this whole ordeal has thrown me for a loop. I feel like your post was meant for me this morning. You are right that we can still live even though we're sick. I am going to work really hard on getting past the self pity and being thankful for what I still have. Thank you. Kendra Quote:
|
|||
Reply With Quote |
10-02-2009, 10:28 AM | #6 | ||
|
|||
Member
|
So glad that your husband is doing so much better now. I freaked out when I read your post on facebook. My mum and I were only discussing you and your husband on the phone this morning and hoping that it would turn out ok.
Thank god you started the mestinon and you were able to give him a big hard thump! Hope he continues to improve and well done on saving his life! Love Rach |
||
Reply With Quote |
10-02-2009, 10:43 AM | #7 | ||
|
|||
Member
|
JoanMarie,
I am so glad that you were able to help your husband! My husband has had a few kidney stones in the past but fortunately that has never happened to him. I will keep that in the back of my mind now though. My prayers are with both you and your husband. I thank God that you were able to help him and I hope that he is able to get that stone out of him real soon. Love and Hugs, Shari |
||
Reply With Quote |
10-02-2009, 02:53 PM | #8 | ||
|
|||
Member
|
What a horrifying, frightening experience! I can't even imagine how you felt having to leave your husband to run upstairs and then back down again . . .
Thank goodness you were there, thank goodness you knew what to do. My husband died of cancer at 42 so I know those awful, oh God help us this is as bad as it can be moments. If it's any comfort, I too had a kidney stone that was too big to remove and the surgery was easy because they don't actually have to cut you open, they just zap it with a laser. And believe it or not my stone was a monster 2 cm. My urologist said in all his career it was the largest he had ever seen and it would probably be sheer indlulgent flattery to say he was 90 thousand years old. I mean he was *old*. So, as I say if it was a breeze for me I'll bet it will be a breeze for your husband. Well, except for after the surgery I couldn't breathe and thought I was going to die (and really I'm surprised I didn't) because I didn't know I had mg. But hey, that's no problem for your husband. Ally Edited to say: Sorry, I just read your last post - didn't realize the stone is in an inconvenient place. Top of kidney? Or top of urethra in kidney? Is that why he wasn't in excruciating pain and didn't realize what was happening? Last edited by bluesky; 10-02-2009 at 03:02 PM. Reason: New Information |
||
Reply With Quote |
10-02-2009, 03:21 PM | #9 | ||
|
|||
Junior Member
|
*edit*God is an AWESOME God! I am constantly amazed at the way God makes all things work out for our good. God is good, all the time.
Your story is truely an inspiration. Last edited by Chemar; 10-06-2009 at 08:45 AM. Reason: members of many or no faiths also represented here |
||
Reply With Quote |
10-05-2009, 12:42 PM | #10 | ||
|
|||
Junior Member
|
Hey,
Glad things worked out for you and your husband. God really does watch over the little things in our lives. He cares too much to ever forget us, and loves us too much to ever be mean. May God bless you both, Steve |
||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Has your Mestinon become less effective? | Myasthenia Gravis | |||
How do you take your mestinon? | Myasthenia Gravis | |||
Another Mestinon Question...... | Myasthenia Gravis | |||
Mestinon | Myasthenia Gravis | |||
Mestinon | Myasthenia Gravis |