So thank you to everyone who urged me to talk to my Dr. about my symptoms...and guess what. She pulled me out of work for another six months, and advised me to start my Social security paperwork. Apparently, because of my intial (sp) positive reaction to the Mestinon, my Dr was under the impression I was doing much better than I in fact was. After discovering how bad off I really was, she pulled the plug. Now I am going into a messy and probably cazy sounding rant, hopefully someone can relate.

I hate my couch, because my butt has disapeared.
I love my couch because it cushions my non-butt since I can't do anything but sit on it.
My tummy which has been stretched to the max with 3 pregnancies, and can't seem to shrink after the most recent, protruds even more when I get weak and can't hold it in.
I'm now taking Prednisone, and seeing a few of it's affects: pimples, hunger (all the freeakin time) and weight gain.
I smell cause it's so hard to schedule a shower between weakness, baby, kids, dinner, and weakness again after I shower.
My teeth aren't any better cause I don't brush as well anymore cause my arms can't do it, and my neck wont hold my head up fore very long.

And I know this is bad , but I had given up smoking and recently started again, since now I can breath. But tonight I said my final goodbye and will begin tomorrow with my self control and denying all of my vices....food, smoking, food. At least I have cable and internet.

I don't know if this is even allowed, but how does your MG fare with sex? It sux man...I won't go into detail...but by the time I find time I have no energy, and by the time I have energy it's just not the same...

So sorry I am in a very strange, slightly irritated yet silly mood.

I'm sorry things have taken a turn in the wrong direction. I certainly did not find your post offensive in any way!! Sounds like you're saying the way it is right now for you. I hope with your neuro's help, things will improve. Until then, the three r's (rant rave and rest) as needed are all perfectly okay!!

Sue

I don't know if this is even allowed, but how does your MG fare with sex? It sux man...I won't go into detail...but by the time I find time I have no energy, and by the time I have energy it's just not the same...



When I read your statement above I dribbled my drink down my chin...

That is just so true and not enough people talk about it

I hope things start improving for you and as for the eating... I started chewing ice whenever I got hunger... Thankfully I can't take pred anymore so that problem is gone.

Sugrkiss,
I know how you feel. This disease is hard but add three kids and a husband to the mix and it sometimes becomes overwhelming! My husband is so darn understanding that it makes it a whole lot easier. My kiddies sometimes take better care of me than I of them. I totally relate to the whole body change thing, prednisone is a double edged sword isn't it?
About the smoking thing, all I can say is I think that is the best thing you could ever do for yourself is to quit. I imagine that it is going to be difficult but you have all of our support.
Take care ~ Melanie

Hi Sugarkiss,

do you use a shower chair, I have one that I don't use all the time, but use it when I'm having a bad day. It certainly helps me out, and I don't have to worry about falling over in the shower(I live on my own and always think about that sort of stuff)
take care
Kate

Yep agree with you on the sex front! No one ever talks about it. I mean hows your sex life going to be adventurous of fulfilling if the only position you can do it in (without fear of collapse injuring both you and your partner!) is missionary!

The only place Ive ever read about the impact of MG on peoples sex lives is the MGFA handbook for Drs. Which encourages people to find alternate positions etc.

The problem I have at the moment feeling as crappy as I do, is I never feel like it. Or if I do feel like it hes too tired from running around all day looking after me LOL.

Its a very serious issue you raise and Im really proud of you for bringing it up.

Love
Rach

Good luck with quitting smoking. I quit 10 weeks ago yesterday and no slip ups! It's one of the hardest things I've ever done, but I'm so glad I did. Not too happy about the weight gain, but I'm not going to let it discourage me. Let us know how you're doing...you have our support.

Hugs,
Pat

Sex? You guys have sex?

Pred will make you in a weird mood all on it's own. And watch those pimples. If they spread or look "****** off" it could be folliculitis, an infection of the skin which requires an antibiotic.

Good suggestion of the shower stool, Kate. I use one; have ever since my crisis in 2005. And I have chairs or stools in pretty much every room.

Seriously, if you are doing that badly, it's time to make the phone call to your neuro. Maybe even have a once over from your primary doc too. Whenever you are on a drug like Pred, you really need periodic appts. to see how it's affecting MG and your overall health.

Congrats on giving up smoking!!! That's amazing.

It's sad that what we want to do comes last, at least that's usually the way it is for me. But sometimes, some days, maybe you can send the kids off with someone, use paper plates and spoons all day, brush those teeth and have some damn, grownup fun. Maybe not like you used to but maybe that's okay too. Keep the phone handy just in case . . .

Annie