Hi

I know thats a lovely topic heading! But I am wondering if anyone else out there suffers from night sweats. I remember reading a while ago that night sweats were a symptom of MG but I have never heard anyone else having them.

I have had them for possibly 5 years. So before I had ptosis or any real MG symptoms. I had them before I was on prednisolone or mestinon. I had my hormone levels checked and they came back fine. Ive had thyroid checks done they are all fine.

I dont get them all the time, but they now seem to coincide with when Im going to have a bad day with MG.

What Im talking about isn't the normal sweating you get on a hot night! This is the type where the bed clothes are wet, Pj's are wet, hair is wet. It wakes me up.

Just wondering if anyone there can tell me if they suffer with them. Im definately not menopausal LOL!

Love
Rach

Well, I do have'm....not all the time...had not put this problem together with MG...maybe cuz it's not that often, but has increased in frequency...I use a fan at night no matter the temp, tried without it, but went right back cuz couldn't stand the stillness...my MG is not bulbar, but limbic, & varies like everyones, take the 180mg ts every day & fill in with the 60's when nec..my tests have all been negative too, exc for a decremental EMG...

Oh, & I'm way way way past menopausal, lol......Dottie

Hey Rach,

I've been getting them on and off for over 10 years now and have no idea why. I too am way past menopause.

Hugs,
Pat

Hi Rach,

I was having them nightly, but I thought it was from just having my baby. Now I get them every once in a while...and ya I wake up completely soaking wet...yuck.

Jessica

Night sweats can indicate low blood sugars at night.

If you are past menopause and still have them, this might be the cause. Blood sugars fall typically in the wee hours, then the liver gets the signal to make sugar for wake up time, and hence the insulin gets dumped in large amounts, and the sweating occurs.
This is called the "dawn phenomenon" and happens with type II diabetes frequently.

Here is a list for night sweats:
http://www.webmd.com/menopause/guide...f-night-sweats

I find that NSAIDs taken for inflammation, make me sweat more.
So if you use these for pain, you might find sweating the result.
Notice that prednisone is on the list at the WebMD site.

Thanks for the post, MrsD, re. nightsweats...My mom gets them all the time...I have a blood glucose testing kit....I'll ask her to check her blood sugar at night to see if it's low...Thanks!

I always thought that nightsweats were a sign of the immune system trying to fight off infection...In January of '08, I got this horrid stomach infection and for about a month after that, had nightsweats regularly...I'd wake up soaking wet...That stomach flu incident is really when things started going downhill with me healthwise...I just felt sick all the time...Then I got another virus about 6-months later, and that was brutal! I had a fever of 104 for like 4-days and had to go to the hospital...I seriously worried that I was brain damaged...In fact, I think that I may have had meningitis...I figure the thymoma had a lot to do with it all...It was after this that I started noticing some very subtle problems with my tongue (mild slurring every once in a while, some subtle problems moving food around while eating) and difficulty sitting up straight because of chest weakness...Got some permanent bruising on my elbows from leaning on them for support all the time!

I think that nightsweats are an important sign that something's not working right...Keep following it, Rach!

Nicky

Rach, Have you told your doctors about this? Have they ever taken your blood sugar levels (fasting)?

With your infection history, I have to wonder about what is going on. Again, maybe they can check your erythrocyte sedimentation rate.

Nicky, yeah, night sweats can be from an infection too. They usually would happen during the day as well but then people might mistake them for sweating while moving around.

Rach, I'm seriously worried about you in general. Something is not right. And if you have MG ("If," yeah, if as in if doctors could grab a clue in your case), then anything like a long-standing kidney infection will exacerbate MG.

What do you have to do to get real help in England? Die? Please get someone to help you soon (if they'll respond to you, that is). I'm so sorry you have so much going on. I wish you had a patient rep. that could expedite your care.


Annie

Annie - yes Ive had my fasting diabetes test and various other tests to do with the night sweats and everyone has drawn a blank. Now why is that sounding so familiar!

I do believe that I read years ago that night sweats could be a symptom of MG. When Ive looked on the internet they did say there was a % of patients where they could find no reason for them to sweat at night like they did. My Drs are aware that it hasn't gone away.

As I said in my first post the sweating tends to come when the MG isn't behaving itself. Last night the sweating was greatly reduced so Im hoping today will be reasonable. Or maybe its a sign that the sweating will stop again for a bit.

On the medical front I have been trying different avenues and I am now waiting for my GP's approval. I have been recommended a Prof. in the UK by Prof. Eymard in Paris so Im hoping that my GP will approve this as I can not see him without it.

Thanks again for everyones responses
Love
Rach

I dont sweat like the night sweats during the day. If I did I would be constantly changing my clothes and showering!

I have no signs of any infection Kidneys or otherwise (just going to run and touch some wood).

Thanks
Rach

Then I'd put my money on hypoxemia (lack of oxygen) causing the sweating. Myasthenia itself wouldn't cause a primary sweating to happen. The weakness causes lack of oxygen causes sweating.