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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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10-18-2009, 11:56 AM | #1 | ||
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Junior Member
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Hi all
Been looking at this forum for a few weeks and decided to join so I can post ..Diagnosed in mid Sept with MG .after spending a night in the hospital with what I thought was a stroke . Initial neurologist made an accurate diagnosis but when I asked him what MG was , he responded ..its an auto- immune disorder and if you want more info go to the internet . Huh !!!!! He's not my neurologist anymore . He did put me on Mestinon ...60 Mg /three times a day . and new neurologist upped it to four times a day . My initial symptoms...speech difficulty ...problems chewing and swallowing .followed by right eye droop , fatigue and neck droop . No lower extremity problems . After almost a month on the Mestinon , I've improved about 30 % as of this week . Still have speech and chewing problems and fatigue ...Mowed grass this week in 94 degree heat ( Florida ) and that was tough . New neurologist recommended Prednisone or Cellcept but I deferred for the present as Mestinon makes my daily life , livable . I'll rethink it if my symptoms get worse ... Lots of folks in here much worse than I am ... so I'll count my blessings . Thanks for all the great information and encouragement that I see here Jack |
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