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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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10-25-2009, 03:13 PM | #1 | |||
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Stephanie, how do you sit or lay down? When I am having difficulty breathing (I am a mostly Bulbar MGer who is also asthmatic), I breathe easier when I lay on my left side -- I also tend to sit angled this way in my recliner when I am in exacerbation. Sometimes, I even lean FORWARD (in a sitting position) to catch my breath. Laying on your back makes it VERY difficult for your lungs to work (in an MG body) -- you are pushing AGAINST gravity.
I tend to have the chest pains when I am in exacerbation -- I've had ekgs and worn a Holter monitor -- all came back "normal". If all else checks out (DO get this checked out completely!!!), you may learn that this is just part of the "MG package" -- especially during an exacerbation or time of stress. You DO sound stressed right now -- WITH good reason. Take care!! |
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10-25-2009, 03:30 PM | #2 | |||
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Quote:
I usually lay on my left side. Sometimes I try sleeping on my stomach, which helps my breathing, but worsens my chest pains. Usually this time of year I even have a hard time wearing a brassiere while lying down, because of the pains. I have had an ekg, ecg, and an TEE but I do not recall having a holster monitor. With no signs heart problems, not even blood pressure elevation, they didn't want to put me through more testing especially after 2 heart catherizations. I am not particularly stressed out in my life right now, but for some reason every year around this time my MG does get worse. Thank you for the suggests though! |
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10-25-2009, 04:26 PM | #3 | |||
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You are wearing a BRA?? First rule of MG -- NO BRA -- ever (unless it is 2 sizes too large)!!! It keeps you from breathing easily. Wear vests over shirts OR shirts with pockets over each "boom-boom".
Yes, Fall is hard for me, too -- and my neuro is busiest at this time of year -- more patients in crisis -- NOT sure why. The Holter monitor is one that you wear overnight -- it has a little pouch that you pin to your clothes. |
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10-25-2009, 04:43 PM | #4 | |||
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Anyways, I have to check out that holster monitor. Thanks for the advice! |
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10-25-2009, 05:00 PM | #5 | |||
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hehehehehe -- "boom booms" to your knees!! You are funny!! Yes, a PUBLIC bra sounds good -- LOL!!!
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10-25-2009, 08:57 PM | #6 | |||
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Hi Jana and Cherry,
thanks for the laughs, I've been away for a couple of days, its amazing how many people can appear when you are offline for a while sooo welcome from sunny Australia!!! I hate this time of the year here, comming into summer, cos summer is really bad for me. I am lucky to have airconditioning, cos otherwise I wouldn't function well during the hot days and nights. Kate
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Outside of a dog, a book is a man's best friend. Inside of a dog, it's too dark to read. Groucho Marx |
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10-25-2009, 09:42 PM | #7 | |||
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Hey girls,
October is Breast Cancer Awareness month!! Save the boom booms!!!!!! HEEHEE Jujuan |
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10-25-2009, 09:45 PM | #8 | |||
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Hi Kate!
If I had the money, I'd change continents with the seasons so that I could ALWAYS be in a WARM place -- LOL. LOVED the movie -- "Australia" -- mainly because of the GORGEOUS scenery. I'm really NOT usually humorous -- Stephanie just got me tickled -- hehehehehe. Nice to meet you! |
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