Hey honey!

Thank you for your kind words - you are so sweet to me!

Now tell me - how are YOU feeling?

Love,
Erin

Hey hon!

HOW do you deal with it? I feel like I'm going out of my mind some times!

I truly believe pain can make people do crazy things!

My insurance will not cover the cost of Lyrica right now - only Neurotin. It has helped with the other pain, but this back business is a whole different story!

How are you doing today?

Erin

OMG...Erin...I had a feeling that was what was going on with you! That means that you DO have 'central' hypothyroidism which has very similar symptoms to fibromyalgia...It means that it's coming from your pituitary gland! Your TSH was low, right, and your T4 is also low, or something like that? Yes, I think that this is why you're in pain... Keep up with the doc. on this one!

I know what you mean, Erin! God...I mean, I did have a lot of pain before the MG and tiredness, but it's the thymectomy that seems to have made my blood work absolutely crazy! My CBCs have always been superb, along with my other tests...Removing the thymoma seems to have made me sorta worse...Maybe my somewhat working thymus was keeping the other autoantibodies I have at bay...Who knows...

Let's just all get better really soon, and ask your doc. about your thyroid readings and your pain...I think this might be the culprit!

I hope you feel better soon!

Are you saying that your doctor knew you were HYPERthyroid and didn't do any more testing?! You have dry eyes, right? Grave's disease is very common to occur along with MG. It would suck to have something else wrong but it's better to know.

http://www.mayoclinic.com/health/gra...CTION=symptoms

Time for a sit down with your primary doctor. And get a referral to an endocrinologist ASAP.

Annie

Hi Erin,

Well, the way I deal with it is by being alone in bed. It is really weird to everyone else but for me it works because if I am around people I am going to be mean and will probably make somebody cry, lol. So instead of doing that I just take a Goody powder or 2 aspirin and just relax.

I also have aromatherapy heating pads that I spritz with water and warm up in the microwave.

If I can't relax at home I will go by Starbucks and get a Caramel double-blended Frappacino. For me comfort foods always work!

It sucks that your insurance does not cover it, but I hope these suggestions help.


Take Care,

Stephanie

Hi Annie! THe way it was explained to me is that my blood work shows an underactive thyroid even though it "reads" an overactive one - does that make any sense to you?

Apparently I'm a freak show for some reason.......

At this point I don't know what to do except ask my PCP to send me to another endo for further lal work.

I don't know why it would show my thyroid as working overtime when it is acually low - do you?

I DO have dry eyes - either that or it looks like i'm crying.....cannot figure this crap out and it is really getting to me!

What do YOU think?

Big hugs!
Erin

What you said made perfect sense to me! I;d much rather be alone than potentially hurt my fellas feelings! They prolly agree! LOL!

You are so young to be going to thru this....how long have had MG?

My 5 dogs are a GREAT source of comfort to me..they never compain and whine - they just love me for who I am......

I hope you have a great day today and just pamper yourself!

Big hugs!
ERin

Hey,

you can't expect yourself to be a saint and always be stoic about this.

and so what if you occassionally lose your temper, and hurt some innocent by-standers, who are your loved ones. trust me, they will survive, and it will also make them understand a bit more of what you are going through.

and didn't you say "for better and for worse"?

on our 25th annirverssary I sent my husband an e-mail, and wrote him that I hope we have many more years "for better and for worth".

he wrote me back- it's also OK with me "for worse", every now and then.

we had our "fights" and dissagreements, before I became ill, so what's the difference now?
and it's so nice to hug each other, after a really bad arguement, and decide that if we were able to get through this, then....

and we all had (and still have) to make our own adjustments to all this. my husband, my kids, and everyone else around. and aren't those that we love most, the ones that can hurt us and dissapoint us the most? and also the ones we can really lean on during our hardest times? and the ones that really care for us, and are ready to accept us even if we are not "perfect"? and the ones we can still support during our better moments?

alice

No, Erin, it certainly does not make any logical sense. Get your blood test results and get a 2nd opinion! What if you have Graves?! What it sounds like is that the doctor is out of their realm and is "guessing." Sorry, it just doesn't add up. An endocrinologist would KNOW exactly what tests meant. There's a big difference between having an underactive and overactive thyroid gland, as I'm sure you know.

And a good doctor would've run your thyroid antibodies and done an ultrasound if needed. Any sign of a goiter?

I hope you can get to the bottom of this.

Annie

Nice catch, Nicky.

Erin, I really hope that today is a better day. That is all we can hope for right? You are so comforting to so many people on this site, that we take it very personally when you are not doing well. My prayers are for you to get some answers finally .... you have been dealing with this pain issue for far too long! Take care ~ Mel