Hey MGer's,

I hope all is going well for you. I've had a symptom that has been relatively minor just tick up a notch on me. I have never had a "visible" diplopia where you could see an eyeball drift but I have definetly had the blurry "double vision". I was always managable with the mestinon and gives me the feeling like if I shook my head hard enough it would get better. This weekend into today though it has become so bad that I am getting dizzy as if I had vertigo. I am miscalculating distances and tripping over stuff , not a good thing to do where I work... Well has anyone of you noticed similar things?

Thanks again... you guys are great!

Hey Aw3sk3r,

I'm not sure if this is exactly what you experience, but I do get blurry vision from time to time and I get dizzy when this happens...This seems to be worse since taking prednisone...

I also have Eustachian tube dysfunction because of my bulbar symptoms...This makes me dizzy too...Basically, because my palate is weak, this somehow affects my ear tubes and I don't drain fluids properly through them...Every now and then, fluid will seep from my ears, especially when I cry (my ears cry too...lol)...Anyway, it sorta causes vertigo for me..I get a lot of crackling, and cannot tolerate certain types of noises, like base noises...Sometimes, it feels like a bug zips by my ear(s) and it feels like there are pressure changes...Having weak muscles causes a lot of problems, even in areas where the muscles are fine!

The only time I have eye symptoms is when it's sunny or if I'm reading and am very tired...I have to close my right eye while reading, otherwise my vision sorta doubles a bit...When it's sunny, my eyelids will stay shut for like ten minutes even after getting out of the sun...My vision also doubles a bit too...I also have problems with eye closure...I used to wake up with dry, red eyes and my eyelids would be swollen...Well, it turns out that I was sleeping with my eyes open...Kinda scary! lol

Take care!

Aw3sk3r, I don't have "visible" DV, either. I usually only see "double" when I look UP or when I look to the RIGHT. But, doing EITHER of these makes me VERY dizzy. I have learned to either close one eye when looking in these directions OR to move my head, instead. hehehehehe -- sometimes people think that I am winking at them!

When I am in exacerbation, I am dizzy ALL the time -- no matter where I look. It doesn't matter though -- I go from my bed to my recliner and back until the exacerbation is over.

You eventually figure out coping mechanisms -- they will become second nature --and this stuff won't be so hard and strange. The first year or so is the roughest.

Are you sure it's the eye stuff making you dizzy? Maybe you're getting the flu!

You can also become dizzy if you are dehydrated. Sometimes you can't even tell you are.

Do not assume it's due to the MG or any meds. Talk to your primary doctor.

Annie

Oh yes, definitely before my MG got under control this was a huge thing I went through.... exactly what you said = miscalculating distances and tripping over stuff.... I had to be so careful and constantly look down at my feet... I couldn't even judge and inch or two step down properly.
Now since I don't have the double vision anymore my perception is tons, tons better.

Hi aw3sk3r,

Welcome to the group! When I have double vision I usually get that dizzy feeling. The next time you have the double vision, look straight into a mirror. You may see your one eye ball looking in a different direction and/or one of your eye lids may be droopy slightly. If it is, put a cool cloth on your eyes and rest them for a while. They may feel and look better for a little while. Worth a try. Take care.

Hugs,
Pat

Hey Margo,

Welcome to the group. As you can see everyone here is so helpful and supportive. You will learn so much from everyone. Love to hear more about you. Take care and keep posting!

Hugs
Pat

Thanks Pat! I just happened to stumble upon this site today.... awesome. I've had MG for 2 years now and still always learning and reading....

Welcome Margo!

Gald you found the group. Great folks, info and chat here!!

Sue

I've had MG for 11 years now and I'm constantly learning new things here all the time! This is a great site and everyone is just wonderful. They have become family. I don't know how I ever made it through this disease without them.

Hugs,
Pat