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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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10-27-2009, 02:21 PM | #1 | ||
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Grand Magnate
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Bring a cake, and some music. Have some fun with it.
Seriously, Brian, I hope it goes well. Pain can be useful, right? You are soooooo happy when it's over. Annie |
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10-27-2009, 02:31 PM | #2 | ||
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Actually I am looking forward to it. Not this test particularly but hopefully the results that come from it. I'm meeting with one of (if not the) leading MG researchers in Canada tomorrow to review my case and see what else can be done to get it into remission rather than maintenance mode.
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10-27-2009, 03:31 PM | #3 | ||
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Hey Brian,
Good luck tomorrow! I hope you get all the answers you are looking for. Take care and let us know how it went. Big Hugs, Pat |
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10-27-2009, 04:45 PM | #4 | ||
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10-27-2009, 05:03 PM | #5 | ||
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10-27-2009, 05:26 PM | #6 | ||
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10-27-2009, 05:53 PM | #7 | |||
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I just started SCREAMING at my computer!!!! Dr. Nicolle's paper is like my MG "bible"!! I keep a copy in my purse -- just in case I need to educate any ER docs, EMTs, etc.
I would be talking the poor man's ear off!! Brian, I hope that you have a LONG, LONG appointment!! WOW!! |
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10-27-2009, 05:56 PM | #8 | ||
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10-27-2009, 06:15 PM | #9 | ||
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Grand Magnate
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I know, Brian, I was trying to be nice. Deepak isn't high on my list, mainly because he acts like he is a self-proclaimed Guru. I heard him say on Larry King, quite proudly, that he has never been sick. As if he'll never get sick because he can "think" his way out of it. Good luck with that.
Annie |
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10-27-2009, 06:15 PM | #10 | |||
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You're so lucky, Brian! I really want to see Dr. Niccole- I heard he's awesome and has great bedside manner...I'm seeing a different neurlogist here in Toronto....She's an expert on MG too, but doesn't really talk to her patients. I'd really like to see Dr. Niccole to see if there are other treatments I could try to get mine into remission...It's already hard for me to communicate because of my bulbar speech and it's that much harder when the neurologist doesn't seem interested or have the time to talk to their patients.
I'm seeing the first neurologist I ever saw tomorrow to get some testing done on my hands...Maybe I'll ask him to refer me to Dr. Nicolle... Good luck! |
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