NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)

- - Flu shots (https://www.neurotalk.org/myasthenia-gravis/106723-flu-shots.html)

Thanks for the info Maurice. :)

There was a doctor on one of the morning news talk shows, that said you can get one in one arm and one in the other.:eek: I don't think so! Pat

Quote:

Originally Posted by Brennan068 (Post 583255)

Got pneumonia and flu shots, getting H1N1 asap.

Brian, did you happen to ask Dr. Nicolle what his thoughts are on this? They are sending me a letter about it, but wondered if you asked him when you saw him. Thx!

Quote:

Originally Posted by Miss Margo (Post 584103)

Brian, did you happen to ask Dr. Nicolle what his thoughts are on this? They are sending me a letter about it, but wondered if you asked him when you saw him. Thx!

I didn't because I already had made up my mind to get it as soon as possible. My wife is a teacher and my daughter goes to middle school; they'll be bringing it home for sure before this is all over. I'd rather not get it personally :). But the reading material he gave me says this regarding immunizations / vaccinations:

Quote:

Routine immunization for diphtheria, tetanus and pertussis (DTP), hepatitis B, and influenza ("flu shot") vaccine is NOT contraindicated in patients with myasthenia.

However, we recommend that you consider the timing of your immunizations. It may not be beneficial for you to be immunized when your disease is very active, in case you have a reaction to the vaccine that might aggravate your MG. Live or partially inactivated vaccines (eg. oral polio, Herpes Zoster (shingles) vaccine) should NOT be given to patients with myasthenia gravis who are on immunosuppression medications.

Note: If you are taking immunosuppressive agents (e.g. prednisone, azathiprine (Imuran) mycophenolate mofetil (CellCept), cyclosoporine (Neoral) or others) the vaccine may not be as effective. However, if your MG is stable, we still recommend that you be vaccinated, including the flu vaccine. (emphasis mine jbr)

-- General questions in Myasthenia Gravis; Wilma Koopman RN(EC), NP, and M. W. Nicolle MD, FRCPC, D.Phil

Of course, if you have an egg allergy like I do, the point is moot! ;)

Thanks brian..... so if I understand that mumble jumble (LOL) because I'm on immuran I shouldn't bother? Sometimes this double talk gets me... all I want is a yes or no! LOL

Quote:

Originally Posted by Miss Margo (Post 584375)

Thanks brian..... so if I understand that mumble jumble (LOL) because I'm on immuran I shouldn't bother? Sometimes this double talk gets me... all I want is a yes or no! LOL

If your MG is not flaring and there are no other reasons not to (egg allergy etc.) then YES get the shot.

My final two cents is, "Your own neuro knows YOU" I won't be getting the flu shot, not only because of what my neuro says, but because of my own experience with it.
I don't want to take the chance. Please everyone, listen to your body.
This is why Myasthenia is the Snowflake disease. We all react so differently. And it also depends probably on how bad one has Mg. My breathing tanks way too easily for me to take a chance. Okay, I'm pretty terrorified to try again.
Becareful out there.
Love Lizzie

So I talked to my neuro's associate yesterday, and he said that I should absolutely not have the H1N1 shot. He said that they have seen patients who have gotten the flu shot go into crisis. He said that even the dead vaccines are dangerous for people with MG.

*knocks on wood* that I don't get the swine flu:eek:

Quote:

Originally Posted by Nicknerd (Post 584763)

That disagrees with the information provided to me by Dr. Nicolle. Absolutely follow your wishes and if your neuro's associate is telling you this feel free to do so.

I am going with what my GP and Dr. Nicolle's info tells me.

Brian.