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Old 10-27-2009, 05:01 PM #1
Pat 110 Pat 110 is offline
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Help Flu shots
Who is getting the flu shot and the N1H1 when it becomes available? I still have some concerns.

I would appreciate any comments or concerns you may have. Thanks.

Pat
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Old 10-27-2009, 05:05 PM #2
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Who is getting the flu shot and the N1H1 when it becomes available?
Got pneumonia and flu shots, getting H1N1 asap.
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Old 10-29-2009, 08:06 PM #3
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Got pneumonia and flu shots, getting H1N1 asap.
Brian, did you happen to ask Dr. Nicolle what his thoughts are on this? They are sending me a letter about it, but wondered if you asked him when you saw him. Thx!
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Old 10-29-2009, 08:24 PM #4
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Brian, did you happen to ask Dr. Nicolle what his thoughts are on this? They are sending me a letter about it, but wondered if you asked him when you saw him. Thx!
I didn't because I already had made up my mind to get it as soon as possible. My wife is a teacher and my daughter goes to middle school; they'll be bringing it home for sure before this is all over. I'd rather not get it personally . But the reading material he gave me says this regarding immunizations / vaccinations:

Quote:
Routine immunization for diphtheria, tetanus and pertussis (DTP), hepatitis B, and influenza ("flu shot") vaccine is NOT contraindicated in patients with myasthenia.

However, we recommend that you consider the timing of your immunizations. It may not be beneficial for you to be immunized when your disease is very active, in case you have a reaction to the vaccine that might aggravate your MG. Live or partially inactivated vaccines (eg. oral polio, Herpes Zoster (shingles) vaccine) should NOT be given to patients with myasthenia gravis who are on immunosuppression medications.

Note: If you are taking immunosuppressive agents (e.g. prednisone, azathiprine (Imuran) mycophenolate mofetil (CellCept), cyclosoporine (Neoral) or others) the vaccine may not be as effective. However, if your MG is stable, we still recommend that you be vaccinated, including the flu vaccine. (emphasis mine jbr)
-- General questions in Myasthenia Gravis; Wilma Koopman RN(EC), NP, and M. W. Nicolle MD, FRCPC, D.Phil
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Old 10-29-2009, 10:44 PM #5
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Of course, if you have an egg allergy like I do, the point is moot!
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Old 10-30-2009, 03:30 PM #6
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Thanks brian..... so if I understand that mumble jumble (LOL) because I'm on immuran I shouldn't bother? Sometimes this double talk gets me... all I want is a yes or no! LOL
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Old 10-30-2009, 03:56 PM #7
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Thanks brian..... so if I understand that mumble jumble (LOL) because I'm on immuran I shouldn't bother? Sometimes this double talk gets me... all I want is a yes or no! LOL
If your MG is not flaring and there are no other reasons not to (egg allergy etc.) then YES get the shot.
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Old 10-27-2009, 05:05 PM #8
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My neuro is one who firmly believes that MG patients should Not get the flu shot, and after my experience from getting one, I'm terrified of what it will do to me.
Just too frightened.
Becareful if you do. Some MG'ers have no problem with them, and then there are those of us who are basically trouble makers, and cause all kinds of problems for our docs...
Love Lizzie
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Old 10-27-2009, 05:07 PM #9
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Thanks Brian. Have you always gotten the regular flu shot without any problems?
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Old 10-27-2009, 05:10 PM #10
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Thanks Lizzie. I too had a terrible reaction years ago from the regular flu shot and haven't had one since. The swine vaccine frightens me even more, but so does the thought of getting the flu. My doctors all have mixed reviews which only confuses more.

Hugs,
Pat
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