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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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10-31-2009, 10:59 PM | #21 | |||
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Hi Lizzie,
I remember when I couldn't even manage those pull off lids on tin cans!!!!! Now I to adore them, a can opener can wreck my whole cooking plan!!! or just slow it down.
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Outside of a dog, a book is a man's best friend. Inside of a dog, it's too dark to read. Groucho Marx |
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11-01-2009, 12:32 AM | #22 | |||
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Quote:
we are all so different, come from different backgrounds, have had different experiences, that there is no way we will all think the same, just because we have a disease (which is also different for each of us), with the same name. still, we can sometimes take something (even 10%) from what someone else says. and those small parts add up together to make our life better. my dad used to tell me, when I was a kid, that when you eat a pomegranat you throw the peel and eat the inside. and this is the way you should approach life-"eat" the good parts, and throw away the peel. and for each of us, it is totally different, but we can eventually find out what works best for us-what is the "inside" of the fruit and what is the peel, without being disrespectful to what works for others, which may be quite different. there is no "one size fits all" here. and I know that certain things that work for me, are a total disaster for someone else and vice versa. hope this makes some sense. alice |
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"Thanks for this!" says: | Nicknerd (11-01-2009) |
11-01-2009, 12:20 PM | #23 | |||
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Hi Jana, thank you!! and ((((hugs)))) I love hearing a lot of different sides. It gives the whole picture of each questions.
Oh, and You're pretty good yourself! We've known each other way too long...lololol, and tooo well...lololol Love You Love Lizzie Quote:
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11-01-2009, 12:24 PM | #24 | |||
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Here's a little tip for the tabs. Sometimes, when pulling the tab is even hard, I'll use a fork or something for a lever, and then pull. Or, when all else fails, I call my husband, or one of my girls to help me.
Alice, you made perfect sense. Love Lizzie |
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11-01-2009, 05:53 PM | #25 | |||
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Love you, TOO, Lizzie!!!!
Alice, your analogy made PERFECT sense!! Are you SURE that you are a doctor (hehehehehehehe)???? I especially agree with the part about taking maybe even 10% of what somebody else says/suggests -- and how that can make all the difference in the world in how we live -- SOOOOOOO TRUE!!! You are also SOOOOO right in saying that what works for one might be a total disaster for somebody else. I have seen THIS first hand. I think that I have some of this MG stuff figured out -- I "can" live with what I currently know about how to manage my particular case. But, I constantly and eagerly read what others have to say -- always thinking that another piece of the puzzle is out there -- that somewhere, somebody knows a way for me to get 5% more strength out of my day -- or 5 more words without slurring -- or 5 more minutes of walking without dragging a leg -- little things that would make all the difference in the world to ANY MGer. |
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"Thanks for this!" says: | alice md (11-02-2009) |
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