Quote:
Originally Posted by jana
I have a friend in Europe who is negative on BOTH antibody tests -- negative on the EMG and SFEMG -- but, POSITIVE on the Tensilon test AND has great results with Mestinon -- she currently takes 10 tablets per day. She was a competitive tennis player and now runs a day care. She is seeing a highly respected Professor of Medicine -- he ran the SFEMG yesterday -- it was negative for the 2nd time -- and he told her that she did NOT have MG based on that result.
I think that he is wrong -- and she does, too. But, we need reports, journals, EVIDENCE for her to SHOW him. Can you tell me where to find some "hard" written proof?
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Jana,
I wish it was so simple, there is an excellent review by Michael Ben-Atar, which goes over all the tests that are used for the diagnosis of MG.
there is also another study that shows that in patients with seronegative MG it is not that rare to have a normal SFEMG.
the problem is that many neuromuscular specialists do not accept those studies, or have all kinds of explanations as to why they have such results, and think that it is impossible to have a normal SFMEG in a muscle that is weak by myasthenia.
this is one of the "windmills" I am trying to fight. and it is not going to happen in one day, if at all.
my suggestion to your friend it to find a more open minded neurologist, that does not think that this is an "infalable" test.
alice
11-07-2009, 03:04 PM
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