My blood pressure went way down on tilt and on the Holter, I got up to 162 or 165 bpm (120 for most of the time during the day I think). They know what it is but they are scared to death to prescribe medication for it I think because they haven't done it before. It's funny because it would be a simple matter to adjust medications even if I did it myself.

You might want to get tested Nicknerd. They have people get tested for Ehlers-Danlos (I guess you know that).

I haven't read through all of your posts but did you have AchR antibodies? (I'm just curious as to the mechanism behind people with Ehlers-Danlos needing Mestinon --and therefore wondering about test results of someone who might have dysautonomia, EDS, and MG).