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Old 11-07-2009, 10:45 PM #1
xanadu xanadu is offline
Junior Member
 
Join Date: Nov 2009
Posts: 76
10 yr Member
xanadu xanadu is offline
Junior Member
 
Join Date: Nov 2009
Posts: 76
10 yr Member
Default How do you get diagnosed?

I have the symptoms- rather mildly perhaps compared to many here - but non the less the puzzling symptoms are there ( and not there). I have the family history. I have the autoimmune history. I have the enlarged Thymus. I have the failed Respiratory Tests. But every MG test so far has been negative. After a rather difficult dental appt this week ( needing jaw prop, choking on saliva etc) the dentist seemed to think MG. The Respiratory Dr already does. But no one will diagnose me. Can I be trialled on Mestinon ? Is it dangerous to do that ? Can you just have mild MG and not look sick enough for the Drs to see it ? I know I always get to the appts early and rest in the waiting room. Should I try to avoid that so he can see how I really am ? You tell the Drs and even when they say they understand - I do not think they do. They only see you for 10 mins and then it is another 6 month wait to the next appt. Sometimes I think that I will only be diagnosed at autopsy!
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