Junior Member
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Join Date: Aug 2009
Posts: 62
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Junior Member
Join Date: Aug 2009
Posts: 62
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My blood pressure went way down on tilt and on the Holter, I got up to 162 or 165 bpm (120 for most of the time during the day I think). They know what it is but they are scared to death to prescribe medication for it I think because they haven't done it before. It's funny because it would be a simple matter to adjust medications even if I did it myself.
You might want to get tested Nicknerd. They have people get tested for Ehlers-Danlos (I guess you know that).
I haven't read through all of your posts but did you have AchR antibodies? (I'm just curious as to the mechanism behind people with Ehlers-Danlos needing Mestinon --and therefore wondering about test results of someone who might have dysautonomia, EDS, and MG).
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