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Old 11-27-2009, 11:01 PM #1
DawnK DawnK is offline
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Join Date: Nov 2009
Location: Massachusetts
Posts: 1
15 yr Member
DawnK DawnK is offline
New Member
 
Join Date: Nov 2009
Location: Massachusetts
Posts: 1
15 yr Member
Default Hi Again

It has been years since I was here...and I need you guys. I am on Pred and Imuran for the thirteen months and have started tapering the pred and am having MG symptoms--ptosis and diplopia. I am just so sick and tired of being sick and tired. I don't want to be on the pred anymore-I miss my body and my face and I am just not sure all the side effects of immunosuppressants are any better than dealing with MG fatigue and symptoms. I'm supposed to call neuro if my symptoms get worse but I don't want to bump up the pred again...now on 30 mg even days and 10 mg odd days. I've had MG for 40 years, diagnosed at age 11. A long time and have managed my disease so well until last year. Oh, I am just so tired. I just need some encouragement!
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