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Old 01-21-2007, 12:59 PM #11
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[COLOR="Navy"]Hi Lois, and everyone..
I been battling my body as usual. I haven't started the physical therapy yet as we are trying to figure out how to go about doing it. It will cost about 60 dollars a week, and we just can't afford that right now. 20 dollars co-pay for each visit. Tomorrow alone, we have to pay out 40 dollars tomorrow for two appointments. All these apppointments add up. How do all of you manage them?
Cellcept seems to be working. Yay... I've been on it for a month, and literally I do feel a difference. My blood work came back good, so it's not affecting my liver. So I am now starting to lower my Prednisone to 15mg daily. And upping the Cellcept to 1000mg daily.
Next month will be starting ritalin, so I'll let you know how that goes.

How are all of you doing during these winter months?
love Lizzie/COLOR]
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Old 01-21-2007, 05:37 PM #12
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Hey, Lizzie! I've been doing pretty good lately. As long as I don't forget my Mesty, I can cope! I hear you about the co-pays. Mine is $15 for my GP, and would be $30 () for a specialist. Several of those visits would really add up! I'm so glad the Cellcept is working for you. I need to read up on it. But I doubt if my GP could prescribe it. As I've posted before, she's my only source of treatment at the moment, unless the MG should worsen so drastically I would have to try to find another neuro. So at the moment, Mestinon is my only resource. I'm just glad it works so well for me!
Have you communicated your problem with the therapist? I remember when my husband was having his cancer treatment, the oncologist worked with us, and accepted as full payment what the insurance paid, basically writing off our 20%. May be worth a shot for you. If they can't do that, maybe they could agree to cut your sessions to one a week, and teach you what do to on your own for the other 2 sessions. Why not give them a call, and speak with their office manager, and see if there is any way they can work with you. It would be terrible for you to not get something you need just because you cannot afford it.
Hugs,
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