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-   -   Crisis (https://www.neurotalk.org/myasthenia-gravis/109071-crisis.html)

AnnieB3 11-26-2009 09:21 PM

Thanks, Brian. But I prefer "brava!" ;) Or bravi, since the entire group here is so awesome.

Learning the hard way, eh? Do you want to be dead just to prove that?

If you are sitting around and are "ok," then you can sit around. If you start to move around a "little" and begin to tank, that's exactly the time you seek out help. You don't wait until you fall over or fall asleep or can't talk or swallow or breathe or move to seek out help!!!

Geez, Tyson, you're wearing me out here. :eek:

Annie

redtail 11-26-2009 09:37 PM

Hi Tyson

I'd have to agree with Annie, waiting til its really bad is a bad idea. Its better to get help sooner rather than later. I've been there done that, not with a serious crisis, but mainly with double vision, if I'd talked to my neuro straight away, I probably could have gotten away with a simpel treatment rather than bumping my meds waaay up.

I know it must be hard for you, I really sympathize, you really need to look after youself, it so hard with this disease, it sucks!!!! I'm still learning stuff after nearly 7 years, I guess cos I really would rather it just went away, still waiting, and it hasn't gone yet.
take care
Kate

Brennan068 11-26-2009 10:03 PM

Quote:

Originally Posted by AnnieB3 (Post 594053)
Thanks, Brian. But I prefer "brava!" ;) Or bravi, since the entire group here is so awesome.

LOL, sorry, never learned Italian...

Brava Annie.
Bravi NeuroTalk

Go the H. E. double two-sticks to the ER Tyson. Tell them what has been happening to you. The worse you can do is give them an easy case for the afternoon/evening man.

tysondouglass 11-26-2009 10:40 PM

Okay okay. So I'm
at the er. Waiting for the neurologist to come. My pulsox is 95.

Happy?;) thanks you guys

Brennan068 11-26-2009 10:50 PM

Quote:

Originally Posted by tysondouglass (Post 594066)
Okay okay. So I'm
at the er. Waiting for the neurologist to come. My pulsox is 95.

Happy?;) thanks you guys

Yes. Thank you Tyson. I'd hate to see a young fella like you kill himself over being afraid to look like a wimp. BTW, at 94, they wouldn't let me leave the hospital when I was in the same situation. O2 sats fall on a logarithmic scale (i.e. really flippin' fast).

redtail 11-26-2009 11:01 PM

Yes I'm happy to Tyson!!!

AnnieB3 11-26-2009 11:40 PM

Me too, Tyson!!!! 95 sitting around can tank to a lot less moving. They should test it while you move around!

I hope they take this seriously. Sometimes ER docs tend to pooh-pooh what they don't "get."

Let us know how it goes. I hope they do breathing tests and arterial blood gases.

Annie

Love the "Thanksgiving Day Neurotalk Tag Team!" :yahoo:

tysondouglass 11-27-2009 12:31 AM

Quote:

Originally Posted by AnnieB3 (Post 594076)
Me too, Tyson!!!! 95 sitting around can tank to a lot less moving. They should test it while you move around!

I hope they take this seriously. Sometimes ER docs tend to pooh-pooh what they don't "get."

Let us know how it goes. I hope they do breathing tests and arterial blood gases.

Annie

Love the "Thanksgiving Day Neurotalk Tag Team!" :yahoo:



They have done a lung test, but no arterial blood
gas. Should I
ask?

Blood pressure was 151/49.

They are keeping me over night and maybe starting plasmapheresis in the morning.they said I wasn't at crisis, yet at exaturbation.

Thank you guys for helping me realize. I'm at duke, in very good hands.

PMCPMC 11-27-2009 01:16 AM

CRISIS THE OTHER NIGHT
As Annie and others have said and takeit from someone who aonly at 58 has realised it ,as such a young age everthing that feels wrong is wrong with mg .better sorry for a mistaken sysmtom than seriously dead from a real one

AnnieB3 11-27-2009 09:25 AM

Well, they probably should've done the blood gas to see how things are, yes.

I'm glad you are getting help!!!!

That blood pressure is really high. Have they done an ECG? If not, they should've done that too. Especially considering that you've been dizzy.


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