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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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11-26-2009, 09:21 PM | #21 | ||
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Grand Magnate
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Thanks, Brian. But I prefer "brava!" Or bravi, since the entire group here is so awesome.
Learning the hard way, eh? Do you want to be dead just to prove that? If you are sitting around and are "ok," then you can sit around. If you start to move around a "little" and begin to tank, that's exactly the time you seek out help. You don't wait until you fall over or fall asleep or can't talk or swallow or breathe or move to seek out help!!! Geez, Tyson, you're wearing me out here. Annie |
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11-26-2009, 09:37 PM | #22 | |||
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Hi Tyson
I'd have to agree with Annie, waiting til its really bad is a bad idea. Its better to get help sooner rather than later. I've been there done that, not with a serious crisis, but mainly with double vision, if I'd talked to my neuro straight away, I probably could have gotten away with a simpel treatment rather than bumping my meds waaay up. I know it must be hard for you, I really sympathize, you really need to look after youself, it so hard with this disease, it sucks!!!! I'm still learning stuff after nearly 7 years, I guess cos I really would rather it just went away, still waiting, and it hasn't gone yet. take care Kate
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Outside of a dog, a book is a man's best friend. Inside of a dog, it's too dark to read. Groucho Marx |
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11-26-2009, 10:03 PM | #23 | ||
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Brava Annie. Bravi NeuroTalk Go the H. E. double two-sticks to the ER Tyson. Tell them what has been happening to you. The worse you can do is give them an easy case for the afternoon/evening man. |
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"Thanks for this!" says: | AnnieB3 (11-26-2009) |
11-26-2009, 10:40 PM | #24 | |||
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Okay okay. So I'm
at the er. Waiting for the neurologist to come. My pulsox is 95. Happy? thanks you guys |
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11-26-2009, 10:50 PM | #25 | ||
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Yes. Thank you Tyson. I'd hate to see a young fella like you kill himself over being afraid to look like a wimp. BTW, at 94, they wouldn't let me leave the hospital when I was in the same situation. O2 sats fall on a logarithmic scale (i.e. really flippin' fast).
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11-26-2009, 11:01 PM | #26 | |||
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Yes I'm happy to Tyson!!!
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Outside of a dog, a book is a man's best friend. Inside of a dog, it's too dark to read. Groucho Marx |
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11-26-2009, 11:40 PM | #27 | ||
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Grand Magnate
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Me too, Tyson!!!! 95 sitting around can tank to a lot less moving. They should test it while you move around!
I hope they take this seriously. Sometimes ER docs tend to pooh-pooh what they don't "get." Let us know how it goes. I hope they do breathing tests and arterial blood gases. Annie Love the "Thanksgiving Day Neurotalk Tag Team!" |
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11-27-2009, 12:31 AM | #28 | |||
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They have done a lung test, but no arterial blood gas. Should I ask? Blood pressure was 151/49. They are keeping me over night and maybe starting plasmapheresis in the morning.they said I wasn't at crisis, yet at exaturbation. Thank you guys for helping me realize. I'm at duke, in very good hands. |
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11-27-2009, 01:16 AM | #29 | |||
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CRISIS THE OTHER NIGHT
As Annie and others have said and takeit from someone who aonly at 58 has realised it ,as such a young age everthing that feels wrong is wrong with mg .better sorry for a mistaken sysmtom than seriously dead from a real one Last edited by Chemar; 11-27-2009 at 09:03 AM. Reason: NT guidelines |
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11-27-2009, 09:25 AM | #30 | ||
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Grand Magnate
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Well, they probably should've done the blood gas to see how things are, yes.
I'm glad you are getting help!!!! That blood pressure is really high. Have they done an ECG? If not, they should've done that too. Especially considering that you've been dizzy. |
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