[sugrkiss]

Hi everyone,

I have a trip scheduled in two weeks to visit Ohio...and I just realized how nervous I am. I recently went to visit the Giant Sequoias, and the elevation made it really hard for me to breath...has anybody been on an airplane with MG? I am doing much much better as of late, since I got my stupid infections under control...but I still have moments and days of weakness. I'm worried about the anxiety and elevation, may stir the pot. And with the cold snowy weather we may enter into when we get to Ohio, I really don't want to be fighting weakness as well. I will definately be calling my Nuero for tips, but I would greatly appreciate any input or experiences.

Also, anybody know what Columbus Ohio is like? I may be moving there next July, that's why we are going ot visit.

Thank you!!!
Jess

[alice md]

Originally Posted by sugrkiss

Hi everyone,

I have a trip scheduled in two weeks to visit Ohio...and I just realized how nervous I am. I recently went to visit the Giant Sequoias, and the elevation made it really hard for me to breath...has anybody been on an airplane with MG? I am doing much much better as of late, since I got my stupid infections under control...but I still have moments and days of weakness. I'm worried about the anxiety and elevation, may stir the pot. And with the cold snowy weather we may enter into when we get to Ohio, I really don't want to be fighting weakness as well. I will definately be calling my Nuero for tips, but I would greatly appreciate any input or experiences.

Also, anybody know what Columbus Ohio is like? I may be moving there next July, that's why we are going ot visit.

Thank you!!!


Jess

an airplane flight can make your respiratory symptoms worse, so I think that if you are having resp. symptoms, it would be advisable to have a respiratory evaluation prior to your flight.
even if you don't have significant respiratory compromise, you may need more mestinon, and proper rest before and after. it is also advisable to schedule the flight during you better hours of the day.

alice

[Scots Kat]

Hi Jess,

I fly between Canada and Scotland at least twice a year and regualrly travel shorter distances by plane. I've never had a problem with any respitory symptoms - on or off planes. I have well-controlled moderate MG.

The worst part for me travelling is the long walks in airport terminals between connecting flights. There have been times I almost missed a flight because I couldn't walk fast enough.

I keep a very close eye on my meds while travelling (I take Mestinon every 3 hours along with a plethora of other pills). I find that making sure they are regular reduces my anxiety.

My advice to you is to try not to worry - it'll only make things worse. Just make sure someone you are travelling with is well informed.

Have a great trip!
~Kathy

[AnnieB3]

Jess, Do you have an oximeter? If you do, try taking that on an airplane. If you already have compromised breathing and your oxygen saturation goes below 90%, chances are that you will not do well at all on a plane. Everyone's saturation goes lower on a plane but it can be more difficult for people with a neuromuscular disease, who may not be able to "compensate" as well for that change.

My O2 sats when I'm sitting on a plane can drop into the 80's. When I walk, I've had them drop down to the upper 70's. Scary.

Do you have a pulmonologist whom you can check with before you go, as Alice suggested? I would highly suggest that too. As would a pulmonologist.

Annie

Never been to Ohio.