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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Junior Member
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Hi everyone,
I am a 28y.o female currently undergoing investigations for MG. I have one last test to do tomorrow (single fibre EMG) which will confirm whether or not I have MG. All the other tests I'm done so far have been inconclusive. For example I had a positive reaction to the tensilon but I also responded to the placebo for some strange reason. If it comes back that I don't have MG then my neurologist wont do anything more for me. He seems to think waiting it out is the best thing for me and that my symptoms will just go away by themselves. I tend to disagree! I thought that by sharing my symptoms with you all, someone might be able to shed some light on my situation. I know you're not drs but from my experiences over the past month drs DON'T have all the answers. symptoms to date: -eye spasms resulting in complete closure of my right eye fr almost 3 weeks. I could open each eye independently but together they'd only stay open for seconds. now they're open ![]() -foot and leg spasms for a day resulting in weakness in my legs (predominantly right). The more I use my legs the weaker they become. I start off walking fine but then my right leg stiffens and I'm unable to bend it as I walk. When I'm not walking my leg plants itself on the ground and I'm unable to lift it up. -weakness in my shoulders. I cant lift them above my head. each time i try to raise them i can lift them less and less.When I rest them for a few seconds then try lifting them again the exact same thing happens -strength declines with each attempt to lift them. -fingers stick together, unable to separate them on demand does anyone have any idea about whether or not my symptoms sound like MG? |
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