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-   Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)
-   -   Suspected MG (https://www.neurotalk.org/myasthenia-gravis/110305-suspected-mg.html)

pollyest 12-16-2009 06:11 PM

Thanks everyone for your responses, at least SOMEONE listens to me :) many people it seems :) i am so glad i joined this forum!
Yes I am lucky to get an appointment before the end of the year. Hopefully I've found a good one too.
The reason why my Dr. suggested a clinical psychologist Jana is because I've already had psychiatrists do an assessment on me and their findings where that my mental state does not play a part in the symptoms i am experiencing. I could have told them that! From the very start my neuro thought there was an emotional component due to the fact that my father passed away in July. Of course it was a very difficult time for me, however I honestly felt that things had become much easier over the last couple of months and that I was coping extremely well. That's why I thought it odd that I would have a delayed emotional reaction so severe 4 months later and not at the time I was going through hell. I'm not ruling out that my grief may have something to do with my physical state, it's just that I refuse to believe it's that and nothing else.

jana 12-17-2009 10:51 AM

Quote:

Originally Posted by pollyest (Post 600438)
Thanks everyone for your responses, at least SOMEONE listens to me :) many people it seems :) i am so glad i joined this forum!
Yes I am lucky to get an appointment before the end of the year. Hopefully I've found a good one too.
The reason why my Dr. suggested a clinical psychologist Jana is because I've already had psychiatrists do an assessment on me and their findings where that my mental state does not play a part in the symptoms i am experiencing. I could have told them that! From the very start my neuro thought there was an emotional component due to the fact that my father passed away in July. Of course it was a very difficult time for me, however I honestly felt that things had become much easier over the last couple of months and that I was coping extremely well. That's why I thought it odd that I would have a delayed emotional reaction so severe 4 months later and not at the time I was going through hell. I'm not ruling out that my grief may have something to do with my physical state, it's just that I refuse to believe it's that and nothing else.

Just to make clear -- IF you do have MG -- and I really suspect that you DO -- your mental state would have a HUGE IMPACT on your symptoms -- and any COMPETENT neuro would know that. Stress, of ANY kind, is HORRIBLE for us -- and increases our problems significantly!!

Factors that worsen myasthenic symptoms are emotional upset, systemic illness (especially viral respiratory infections), hypothyroidism or hyperthyroidism, pregnancy, the menstrual cycle, drugs affecting neuromuscular transmission, and increases in body temperature. James F. Howard, Jr., M.D.,Department of Neurology,The University of North Carolina at Chapel Hill

http://www.myasthenia.org/hp_clinicaloverview.cfm


So, I am HUGELY relieved that you will be seeing someone else, soon -- and hope that if and when you get a dx, there is somewhere that you can report this "dud" -- some medical board or something.

HONESTLY -- don't you have ENOUGH to deal with -- putting up with the symptoms???? Now you have to deal with some guy who thinks you have nothing better to do than "create" physical problems in a "sad mind". WHERE do they GET these docs???????????????????? Sorry, Pollyest, this really IRRITATES the SNOT out of me!! I have a Master's in Counseling -- and I sometimes wonder WHERE in the WORLD these people GET their BRAINS!!!!!!!!!


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