FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
Reply |
|
Thread Tools | Display Modes |
12-21-2009, 07:04 AM | #11 | ||
|
|||
Junior Member
|
Went to the ER in London; they did a bunch of neuro tests and scans. The cause if the symptoms is nit in obvious yet, and they recommended flying home to start this diag process with docs who are already familiar with ne.
Doing just that. Should be at our hospital in 6 hours. |
||
Reply With Quote |
12-21-2009, 10:30 AM | #12 | ||
|
|||
Member
|
Please do keep us updated, from what you wrote it "sounds" like MG but with your medical history only your Dr can say for sure. Keeping you in my thoughts.
|
||
Reply With Quote |
12-21-2009, 10:33 AM | #13 | |||
|
||||
Member
|
Quote:
So, get yourself prepared. Read -- study -- KNOW your subject. Most of US know as MUCH or MORE than most neuros about MG. No BRAG -- just FACT. We have HAD to learn -- to survive. As others have said -- I'm hoping that you do NOT have MG!!!! But, IF you do, we will be here to help!!
__________________
~jana Last edited by jana; 12-21-2009 at 10:35 AM. Reason: Can't spell -- LOL |
|||
Reply With Quote |
12-22-2009, 07:57 AM | #14 | ||
|
|||
Junior Member
|
Back at hometown now, and admitted to the hospital.
MRI shows enhancement all over the cranial nerves. Trying to figure out if this is a CNS relapse of my lymphoma, mastoiditis, myasthenia gravis, or anything else. Please pray it isn't a relapse. Please! |
||
Reply With Quote |
12-22-2009, 10:53 AM | #15 | ||
|
|||
Member
|
Tom,
Relieved that you are home and with the medical folks who are most familiar with your history. You will be in everyone's thoughts and prayers. Please let us know how you are progressing as you are able. Sue |
||
Reply With Quote |
12-22-2009, 01:22 PM | #16 | |||
|
||||
Member
|
Quote:
(((HUGS)))
__________________
~jana |
|||
Reply With Quote |
12-22-2009, 02:48 PM | #17 | ||
|
|||
Member
|
I am so happy you are in good hands. I'll be keeping you in my thoughts & prayers.
Hugs, Pat |
||
Reply With Quote |
12-23-2009, 03:34 AM | #18 | |||
|
||||
Member
|
Tom,
glad you are home, you are in my thoughts, take care Kate
__________________
Outside of a dog, a book is a man's best friend. Inside of a dog, it's too dark to read. Groucho Marx |
|||
Reply With Quote |
12-23-2009, 07:12 PM | #19 | ||
|
|||
Junior Member
|
Had massive cranial nerve enhancement and CSF was positive for lymphoma. Looks like it's not MG, and that I get to have more chemotherapy.
Thanks for the advice everyone! |
||
Reply With Quote |
12-23-2009, 07:22 PM | #20 | ||
|
|||
Grand Magnate
|
I am so sorry. I know this is a tough cancer and I hope you can beat it.
If you do have it invading your thymus, however, you could possibly have "secondary" MG due to that. So at least let your doctors be aware of that, okay? I'll send lots of good thoughts your way. I really hope you overcome this setback. Annie This may or may not be relevant but I had to mention it. Getting tested for celiac disease may be worth while. If you have it, maybe it would help to stop having gluten. http://www.celiac.com/categories/Cel...eliac-Disease/ http://www.lymphomainfo.net/conditions/celiac.html Last edited by AnnieB3; 12-23-2009 at 07:44 PM. |
||
Reply With Quote |
Reply |
|
|