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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Hey guys, so just got to Maine last night. The flight wasnt an issue yet, now im feeling it.
I just got up from a nap. I feel very light headed and just overall very tired, and when coming up the stairs my heartbeat goes up very high. I was playing with my cousins (aka ran around the house playing tag for 2 minutes) and could hardly breathe after that, so im not sure what i should do. I know doing too much could put me back into Crisis, yet, i thought the prednisone would be helping. For today my eye was ALL the way closed. I didnt know that i was on 80mg of prednisone, which was really high. I was supposed to take 3 a day, not 4. I was getting nose bleeds, and i suppose thats why. Well, im just checking in with you guys. I thought pred. worked right off. Does it not? Im drinking alot more water than before. Ill be careful and hopefully not end up in the hospital. Hope your all feeling well. |
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