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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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01-07-2010, 02:24 AM | #1 | ||
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Joan: lol.. i'm not sure what caused the pain too, thought that its from the flu. Still learning how to pace myself so that my body wont go on strike!
Pat: thank you!! I do not dare harbour thoughts of finding a really good neuro though. am sick of paying them to hear rubbish. Kendra: Thanksss!! Nice to meet you too! =) Ally: Yup, theres no easy way through this. Found that it helps when i focus on things i have to do like my work. I hate having to stay at home and rest cos thats when my mind runs wild. Lol. How have you been? Hows ur condition? Rach: Thankss! *hugs* Annie: I'm just as confused as you are! The neuro who said that anyone who says that my symptoms are caused by depression should see a psychiatrist themselves, started giving me anti depressants which I simply refuse to take. I'm not believing in my initial diagnosis of MND since no one is able to show me that I have it for sure. Sunny south refers to Singapore, where I am. I'm no where near any ALS centres or associations so havent been able to get to one. I'll support u if u start a great centre! Lol. I don't really know how to describe the muscle pain, but they feel as if its all cramped up inside, and they hurt when I try to walk. More recently, the soles of my feet hurt alot whenever I walk. Never had these pain before so I'm not sure whats causing it too. I havent done any tests ever since I stopped my neuro visits. |
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01-07-2010, 03:07 AM | #2 | |||
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Quote:
Connie, I am with Annie, on starting that center. and with you on- The neuro who said that anyone who says that my symptoms are caused by depression should see a psychiatrist themselves, started giving me anti depressants which I simply refuse to take. I believe that people know when they are depressed, and when they are just sad because of the hard circumstances of their life. a good and caring physician should be able to differentiate between normal reactive sadness/depression and true depression which is a psychiatric illness, that like any other illness requires medical treatment. if you have the time and energy look up this- http://www.oup.com/us/catalog/genera...=9780195313048 all the best, alice |
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01-07-2010, 03:26 AM | #3 | |||
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Connie,
so good to hear from you, how is the hot weather treating you. I really feel for you, as here in Australia its been quite hot, and today was very humid, ick, makes my mg bad. Hope you are doing ok take care Kate
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