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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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still feel it is not clearing. GP says there is also alot of viral chest infection about which antibiotics cannot help. |
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#2 | |||
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That's okay, Rach! It sounds like you had quite a rough time- that's odd that you had an allergic reaction to th penicillin. Are you feeling better now? Do you still have the infection? I've had a cough too, a dry one, which is really annoying...I hope that the infection clears asap!
![]() Thanks for the info. re. the prednisone- I can't wait to be at 20mgs! Take care! Nicky |
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"Thanks for this!" says: | PMCPMC (01-03-2010) |
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#3 | ||
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Still feeling a bit rough and having an MG flare up now, so mestinon lasting about 2 hours. Yeah Ive got the dry cough too with a tickly throat. The blotchy rash has gone now so thats good!
Love Rach |
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"Thanks for this!" says: | Nicknerd (01-04-2010) |
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well i was on 60mg preds every other day after a few months the preds were working well thou side effects were bad then my neuro put me on imuran as well that made me unwell but i hoped it would inprove but it didnt so then the plan was to stop the imuran and reduce the preds which now ive stoped for about 5 weeks and im able to cope with the weaknest and at last my face is starting to look like it did which is great i think my body misses the preds i still get swollen wrists and feet and my tummy is still big but hope it won't take 2 years for that to go so hope your moonface goes soon and good luck with the reduction of preds
alan |
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"Thanks for this!" says: | Nicknerd (01-04-2010) |
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#5 | |||
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Thank you, Allan. That is so great to hear that you are off the meds. and are just experiencing a bit of weakness.
I'm glad to hear that the moonface is going away- I'm sure that the other side-effects will also disappear quickly (lipodystrophy), especially now that you're feeling stronger. This is terrific news! So you're completely off of the prednisone now? How long were you on it for? ttys! Nicky |
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#6 | |||
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hi nicky
ive been on preds for a year i started just as my MG was becomming bad i was having problems breathing and swallowing it took time before their was a inprovement but also the side effects were not nice i started to have eye problems and had a start of gloucoma i'm sure that comming off the preds will in prove my eye problem once the weight starts to come off i'm hoping to travel to Australia to see my daughter thats my goal this year as she's having a baby soon . and yes no drugs at all i'm waiting to see my neuro to see what he plans alan |
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