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04-19-2010, 07:48 PM | #141 | |||
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Awesome, Allen!
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04-20-2010, 10:22 PM | #142 | ||
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Member
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Allen...that's fabulous news!
Pls. post pix of bedroom set when completed - would love to see your handiwork! Sue |
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04-26-2010, 05:48 PM | #143 | ||
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Member
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only cause you asked, and it shows Myasthenia doesnt keep me anymore from my hobby. Ivig has been miraculous for me. been 17 days since I took 15 mg of mestinon. feeling strong.
I dont have any finished pictures of the bed, the one of the bed is while it was being made. Too big to set it up in my house. Hes taking it to his home. All mahogany. The other pic is a dresser and nightstand, then the footboard with finish applied. my picture quality is bad, but all the pieces are the same reddish brown color. Im no pro, only been working with hardwoods for 2 years,but I enjoy this stuff. My goal is to build him an entire house full of furniture.(I have an entertainment unit and 2 other tables built for him already, he moves into his home in a few weeks) to everyone, I dont mean to get anyone down by me posting a picture showing IM feeling so well lately, Im able to work at my hobby alot. Im not bragging. Please understand its my hatred of this disease that drives me. I will not give in, and I do whatever I need to do to feel better. Woodworking helps me feel better inside. It relaxes me. Last edited by allen L; 04-26-2010 at 06:07 PM. |
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04-26-2010, 09:16 PM | #144 | |||
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I can't imagine feeling down because you are feeling good. In fact I think it gives the rest of us hope to see others with MG have good days (or weeks, or even better, years). I have been happy hearing that you are feeling better, that something works to minimize MG. I hope it continues.
Please continue to post as things change for you.
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04-27-2010, 08:55 AM | #145 | ||
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Member
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Hope you continue to do well Allen! Always nice hearing some good news...gives others hope too!
Hugs, Pat |
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04-27-2010, 08:54 PM | #146 | |||
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Member
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Allen...Your carpentry is so beautiful...Please keep the pics. coming!
Don't ever feel guilty about feeling better! Seeing the great success you've been having with the treatment gives everyone lots to look forward to. It's also nice to see the beautiful things members do...We can match these creations with the words and experiences in the writing...Kinda cool. nicky |
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04-27-2010, 09:19 PM | #147 | ||
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Member
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thanx for the kind comment.
I came home from work today and had a letter from my insurance company waiting. seems IVIG is now considered a specialty drug. As of April 1st, 2010, the specialty drugs are only allowed through one supplier. While I dont have a huge problem with this, it means I wont be able to use the supplier the neuro recommends and I was extremely happy with. Ive already set up the same nurse for my May therapy but Im not sure if I can have the same company. When I questioned my doctors assistant who sets up all of the home infusion therapy , she told me she hasnt gotten good feedback on the company my insurance company is making me use. |
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04-29-2010, 12:38 PM | #148 | ||
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Junior Member
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Allen,
Amazing stuff there, both the furniture and the health... I have had 2 (1 week) rounds now of IVIg and have noticed a marked improvement, though the IVIg has caused tremendous headaches for me. My only fear is that the effects of the IVIG will wear off, and I'll be back to crawling around... I continue to pray for you and everyone here! Quote:
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04-29-2010, 09:08 PM | #149 | ||
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New Member
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I am also in the same position. I feel very uncomfortable that my insurance company now is making the choice of the drug supplier and the nurses. Obviously they were chosen because they cost less... so what does that mean about their product and nurses???? not happy!!!!!
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05-03-2010, 02:18 PM | #150 | ||
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Member
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another week and still no need for mestinon.
How does everyone deal with weight issues(as in way too overweight)and Mg? I sometimes feel my exhaustion at night, is more related to my fat than my mg. I dont know. I do know Im getting fatter due to lack or excercise, more eating, and just getting older and not moving around as much as I did a year ago. |
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