I do feel guilty once again posting on this site.
The horrible condition so many of you are in, reading some threads always rips my insides out knowing how crappy this disease is, knowing noone is in control of themselves.
It sucks. It really just sucks.
Im suffering migraines and unnable to just use my eyes as Id like too, and Im afraid other symptoms might be appearing, like my arms feel like fire and lead and dont want to be doing anything but hanging down.
I was certain my hand and arm problems might be arthritis related, but I noticed my stiffness usually was fine when I was working, but then my arms would get extremely weak and my muscles felt like, like ,I cant describe it, my arms just felt like they had enough.Ive been getting sort of a wasted feeling, like if I dont sit down and rest Im going to just tip over. Its very hard for me to describe. Ive never felt like this, and my pressure is fine, my sugar is fine, my muscles just feel tired.
I dont know anymore, Im confused, Im disgusted, Im very angry, and Im totally ****** off.
I gave in today and agreed with my neuro to go for IVIG. He feels I will have a completely successful reaction, but says nothing is set in stone.
Im waiting for my insurance company and his secretary to set me up. Im not looking foward to this, he almost knocked me off my feet when he told me 5 days, 5 FREEKIN days, in the hospital. 5 days, is that insane?
Im going to let them handcuff me to the bed or to a chair because me and being in solitary confinement for 5 days doesnt work out well.
Ive got manic energy that must be addressed.
This all sucks. Im not venting, Im just giving a total description of what I think of this disease. It sucks.