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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Hey guys,
I was talking to a lady with MG who mentioned a treatment that I'd never heard of, but is sorta similar to chemotherapy. Check out this link; http://www.hopkinsmedicine.org/hmn/W08/feature1.cfm For those of you who feel that your MG is refractory or difficult to cope with or control, would you consider this? I don't know...It seems very tempting to me...It's 4-days of hell for a possible cure...The 'cure' rates are something like 50% for all the autoimmune diseases it's used for, with many others having a disease that's much more easy to control... How do you guys feel about this? It says that many MG patients can get rid of their symptoms for like 10-years...Doesn't sound too shabby to me, but it's risky...I wonder what it's like for thymectomized people...Can they still make T-cells properly without a thymus after having the immune system wiped out? Nicky |
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