NeuroTalk Support Groups

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- Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)

- - Hey ya'll! (https://www.neurotalk.org/myasthenia-gravis/111991-hey-yall.html)

Erin ~ glad to hear from you. I always send positive thoughts your way! I hope that everything goes well at the Mayo clinic. ~ Mel :)

Erin, I'm sorry you haven't been doing very well. I hope the IVIG works well. Good luck on your trip. Take the Purell. ;)

Annie

Erin!

I am so happy to hear from you!

Keep us updated when you can.

I will be thinking of you.:hug:

Erin, it's to good to finally hear from you! We've all been so worried about you. Sorry you had such a scare, but so happy you will be going to the Mayo soon. You have been through way too much, but it sounds like the new year is going to be good to you. I will be keeping you in my thoughts & prayers. Take good care of yourself and please keep us updated.;)

Big Hugs,
Pat

Erin...

Hope your New Year is waaaaaaay better than last!! Good luck at Mayo. Curious to know who the MG guru is in Houston. Take some time to do something fun on Arizona!!

Hang in there!
Sue

so glad to hear you are making progress

Quote:

Originally Posted by erinhermes (Post 608514)

Hello everyone! :hug:

Been gone for a while now due to illness/stress and will prolly be off for a while......needless to say it has been a crazy month or so.....

I love my neuro, but have been going downhill for a while so I went to see a new one who told me I would prolly be too "complicated" a case for her and she wants to send me to a neuro's neuro here in SA.

Bad scare with left breast - biopsy came out NEGATIVE but they kept the clamp in for future reference and I need to go in every 6 months from here on out to get it checked out:eek:

Edema still driving me CRAZY! I'm gaining about 7-14 lbs @ this point and have had doppler tests, lab work, etc to rule out the problem. Saw my internist who swore up and down it was heart related so I went in for a test on my heart - thank God it turned out OK!:D

3 fractures all told at this point - spine, hip and ankle, though the pain has FINALLY been manageable:D

I'm going in for more IV IG next week - FINALLY! I have been BEGGING for IV IG, but Dr. I was concerned that it was the cause of my back pain - NO (!) it was the steroids that were making them brittle and weak...........

Finally OFF the cyclosporine! It was awful!:eek:

The IV IG should pep me up and give me energy! Just love the stuff! Plasma exchange is just too hard on me.....

I'm heading to the Mayo on the 25th! Yippee! I've also been told that one of the "top" people for MG is here in Texas - Houston to be exact, so I'm going to head over there when I get back......just want some of my energy back!:D

Had a GREAT xmas! It was so much fun seeing all of the little ones running around! We had it here so I could climb in to bed when I was tired! THe house looked great due to my aunt who came down and helped decorate. IT was wonderful!

How are all of YOU feeling? I've missed you all soooo much!

Love,
ERin:hug:

yours posts are an inspiration to those new to mg and those who have been here a while know how much your support means to others .
My family pray for your improved health.:hug:

Good luck Erin. I admire your positive outlook in spite of everything you have been going through. You are really an inspiration to us and I pray that things will get better for you real soon.

Take Care :hug:

Shari

Erin,
I was so glad to see you had posted an update. I have often wondered how you were doing. It sounds like you have had some scary stuff going on. I'm glad it all came back ok!!! Good luck at Mayo and please let us know how you're doing when you're up to it. We miss you around here.:grouphug:
Kendra

Hey Erin,

Glad to hear from you! Hope everything goes well with you at the Mayo clinic and in Houston. From what I hear the Mayo clinic is amazing! Have a good week next week after your IVIG! :)

:hug:
Kristy