Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 01-11-2010, 07:50 PM #11
DesertFlower's Avatar
DesertFlower DesertFlower is offline
Member
 
Join Date: Aug 2009
Location: Tucson, AZ
Posts: 466
10 yr Member
DesertFlower DesertFlower is offline
Member
DesertFlower's Avatar
 
Join Date: Aug 2009
Location: Tucson, AZ
Posts: 466
10 yr Member
Default

[QUOTE=Nicknerd;609502]Desert,
How many fillings did you have removed, and what made you decide to have them remove at that time?
QUOTE]

I had two fillings removed two different times...and I remember having a metalic taste in my mouth that faded over a few weeks.

The first time I had two fillings removed because one had a new cavity and the other one was in bad shape according to the dentist. This was a long time ago, about 1995.

I developed many allergies including a nickel allergy over the next 6 months or so and my doctor at the time recommended not getting the silver fillings because they contain a small amount of nickel (or something else I had tested allergic to, I am not positive it was nickel) and he thought I might be allergic to my current fillings.

So when I got a cavity earlier this year I decided to get the two nearby fillings removed too.

From now on, if I need any silver/mercury fillings removed I am going to make sure the dentist takes precautions so I don't get exposed to mercury. Not all dentists do this, but I have found one in my area that does and I plan to go see him next time.
__________________

.
DesertFlower is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Nicknerd (01-11-2010)

advertisement
Old 01-12-2010, 11:12 AM #12
BillF's Avatar
BillF BillF is offline
Junior Member
 
Join Date: Nov 2007
Location: Illinois
Posts: 17
15 yr Member
BillF BillF is offline
Junior Member
BillF's Avatar
 
Join Date: Nov 2007
Location: Illinois
Posts: 17
15 yr Member
Default Just Cautious

Nicky,

I just get concerned about pseudo science writing. Without looking at the specific book, I wanted to raise levels of awareness concerning science garbage, so I have no known knowledge of what is in the book. I am just wary. Dr. Kerr who wrote the forward has sound credentials. I will read the book now.

That said, I believe that a high degree of care should be used in reading any popular science books. That's all. By the way, one supplement used by the same person I mentioned in my post was OK. I researched and found out it was popular in Japan as a medically sanctioned item (mushrooms for nausea from chemo). It was, of course, low cost and widely available as opposed to the costly supplement I mentioned.

Bill
BillF is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Nicknerd (01-12-2010)
Old 01-12-2010, 05:55 PM #13
dog lover's Avatar
dog lover dog lover is offline
Member
 
Join Date: Aug 2009
Location: mo
Posts: 267
10 yr Member
dog lover dog lover is offline
Member
dog lover's Avatar
 
Join Date: Aug 2009
Location: mo
Posts: 267
10 yr Member
Default the autoimmune epidemic

DesertFlower,
Thanks so much for posting this!!! I will be reading this. I agree that we are exposed to so many toxic things in this day and age. It is very scary!!! I have 2 very old mercury fillings that I have considered having removed but I am concerned about it making my MG worse. One of them has to come out soon, the dentist told me it is basicly a shell with cracks all around and the old filling inside. I had it put in when I was 15 so it's been there a long time. I wish I could say I'm like Annie and don't care about what caused it as much as wanting to feel good but I would like both. I can't seem to pinpoint mine to anything other than tremendous stress. I will always believe mine was triggered by an emotional breakdown. Thanks again, I look forward to reading this.
Kendra
dog lover is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DesertFlower (01-13-2010)
Old 01-12-2010, 06:09 PM #14
PMCPMC's Avatar
PMCPMC PMCPMC is offline
Member
 
Join Date: Nov 2009
Location: belfast n ireland
Posts: 149
10 yr Member
PMCPMC PMCPMC is offline
Member
PMCPMC's Avatar
 
Join Date: Nov 2009
Location: belfast n ireland
Posts: 149
10 yr Member
Default Extreme stress related

Quote:
Originally Posted by dog lover View Post
DesertFlower,
Thanks so much for posting this!!! I will be reading this. I agree that we are exposed to so many toxic things in this day and age. It is very scary!!! I have 2 very old mercury fillings that I have considered having removed but I am concerned about it making my MG worse. One of them has to come out soon, the dentist told me it is basicly a shell with cracks all around and the old filling inside. I had it put in when I was 15 so it's been there a long time. I wish I could say I'm like Annie and don't care about what caused it as much as wanting to feel good but I would like both. I can't seem to pinpoint mine to anything other than tremendous stress. I will always believe mine was triggered by an emotional breakdown. Thanks again, I look forward to reading this.
Kendra
I also put mine down to extreme stress.
I have come off all mg medication as I weighted up the problems before dg and after and decided I was crazy continuing with a cure that was one hundred times worse than the problem.
So far eye ptosis still gone and strenghth in arms still there ,
These were my problems before dg.
Chest and breathing problems are infection related which so far four courses of antibiotics have not cured,
PMCPMC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Nicknerd (01-12-2010)
Old 01-12-2010, 10:08 PM #15
Nicknerd's Avatar
Nicknerd Nicknerd is offline
Member
 
Join Date: May 2009
Location: Toronto, Canada
Posts: 547
10 yr Member
Nicknerd Nicknerd is offline
Member
Nicknerd's Avatar
 
Join Date: May 2009
Location: Toronto, Canada
Posts: 547
10 yr Member
Default

That's okay, Bill

I totally understand where you're coming from, so it's all good...I'm also wary of postulations on causes of diseases, but I'm one of those people who also wants to figure out 'why' or 'how' even though it's a really difficult task as there are so many unknowns, or so many variables...I sometimes want to make some sort of circle graph but I wouldn't know where to start..lol

For me, it seems like it doesn't hurt to avoid chemicals, but it's true that chemicals are all around us, so it's hard to truly avoid them for the most part...Plus, plenty of people are exposed to the same chemicals, but don't get sick...SO many question marks...I guess it's that need to want to have some control over something that seems to have a mind of its own...But then when the disease calms down sometimes, I wonder why...I want to figure out what makes it calm down so I can replicate it so I can get my life back, gosh darnit! (venting moment lol)...

But yeah, you're totally right about the supplements...I've been a sucker plenty of times...I have a laundry basket full of supplements that I've accumulated over the last year...Some, I use regularly, and then others, I don't (like moducare, manganese, NAC, etc.)...So you're definately right that we need to be wary...That book doesn't push supplements, though...It doesn't seem to have any agenda, so it's a good one...But you're right that there are books that seem to promote certain products and we have to be careful.

Oh yeah, I wanted to ask you something (this is the reason for the edit)...Was one of the products that cancer patient purchased Indole 3 carbinol, and do you know anything about that one by any chance? I was taking that for many months prior to my speech issues...I have fibrocystic breast disease and was taking it for that...It affects the way estrogen is metabolized and is supposedly very good for people who have hormonal cancers (prostate, breast, etc.)...Anyway, that one actually got rid of most of my cysts...I sometimes wonder if it affected my thymoma in any way too...I've read that Estrogen is a positive thing when it comes to thymomas for some reason, but I didn't really understand the literature that I came across completely...
Nicky

Last edited by Nicknerd; 01-12-2010 at 10:55 PM.
Nicknerd is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DesertFlower (01-13-2010)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
autoimmune amit Peripheral Neuropathy 7 04-13-2009 04:06 AM
Newbie w/Autoimmune SFN dmouse Peripheral Neuropathy 26 01-26-2009 12:56 PM
New to AutoImmune Macophile Autoimmune Diseases 8 12-30-2008 02:06 PM
New med for autoimmune issues Silverlady Peripheral Neuropathy 0 03-10-2007 07:52 PM
yet another autoimmune disease jnewk Multiple Sclerosis 3 11-18-2006 10:22 AM


All times are GMT -5. The time now is 03:58 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.