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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Junior Member
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Hi Everyone,
I have read that alot of people mention on here that they go back kinda regularly for Plasmapheresis, like once a month or every so many weeks. My questions are: How often do you go for plasmapheresis and where is the port? What kind of port do you have? My dad is currently in the hospital because he had a crises, and has had plasmapheresis twice inpatient in the ICU. Moving forward we were talking to the docs about that he might need it somewhat regularly, and we were discussing how they could access him (via port). I just wanted to see what others have done. Also, do you go in the hospital for a few days, or is it outpatient on a day to day basis? Lots of questions I know! I hope they all make sense. Strength to all! Dana |
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