NeuroTalk Support Groups - Cyclosporine? Anyone else have these problems?

Hi sweetheart! :hug:How are you? Thanks for your sweet reply!

I truly believe it IS the cyclosporine that has kicked my butt - I have NEVER felt this bad - except for b/4 my dx.......I am just wiped OUT all of the time...can never get enough sleep......edema through the roof......hopefully this will all go away soon!:D

My neuro does truly believe that it is the cyclosporine that has caused a lot of this damage, b/c I never had broken bones or all of this fatigue b/4, so I'm off forever! We are going back to Cellcept after the Mayo - YAY!

Enough about me - how are YOU? Are you feeling better?

Love,
Erin:hug:

Quote:

Originally Posted by Joanmarie63 (Post 612531)

Erin,

My Dr. told me to start taking Co Q-10, so I looked it up and it spoke of it helping Cyclosporine toxicity, maybe you have too much cyclosporine in your system?

I don't know anything about that medication but I thought of you when I read about the Co Q-10 on the Mayo site. It might be worth asking your Dr. about.

Good luck sweetie.