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-   -   Back from the Mayo! (https://www.neurotalk.org/myasthenia-gravis/113493-mayo.html)

kristy 02-01-2010 10:49 AM

Erin,
It sounds like your experience at the clinic was fantastic. Your new neuro sounds nice. I am so glad that they have a plan worked out for you. You have been through so much and you totally deserve the treatment from such great doctors. Hope that your recovery is speedy.
:hug:
Kristy

Alan53 02-01-2010 10:57 AM

hi erin
it sounds like a wonderful place and what a nice thought flowers!!!
what a shock having all the bone problems hope you get off the preds as soon as possible but seems crazy that they never spotted the danger with all the hospital visits you have had hugs
alan:hug:

rach73 02-01-2010 12:03 PM

hi Erin,

I hope that they can figure out a way to get you off the pred as quickly as possible.

Im glad you are back on here I've missed you!

Love
Rach

xanadu 02-01-2010 04:57 PM

Hi Erin, So glad you are getting some help at last. It sounds a lovely place and the flowers sound awesome ! Hope the bones start healing soon.

DesertFlower 02-01-2010 07:02 PM

Erin,

I am glad you have returned and that you have a doctor that will help you get better.

Take care of yourself.

:hug:

rezmommy 02-02-2010 01:01 PM

So glad that you are home and have some answers. Take care!

Shari_W 02-02-2010 01:39 PM

Erin,
I'm so happy that you were able to get the care that you deserve at the Mayo. I am praying that you will continue on the path to good health and healing.

Take Care,
Shari

dog lover 02-02-2010 06:50 PM

Back from the Mayo
 
Hi Erin,
I am so glad to hear you finally have some answers and had a good thorough check up from head to toe. I know that must be such a relief! How do you feel about coming off the Pred? I have been on it for almost 4 months now and am in the tapering process but am already having side effects that are scaring me to death! When you get time I would love to hear how quickly they plan to get you off of it and are they taking you off of it completely or will you remain on a low dose?

I totally understand you wanting another neuro after your experience. I know you love him and it is SOOO hard to change Drs. but you are absolutely right that he didn't take your concerns seriously and you were walking around with broken bones for goodness sake!

I truly believe you are on the right path now and will soon see major improvement as you come off the Pred!!! I am very impressed that the Dr sent you flowers. That is incredible. Please keep us posted when you're up to it. It just isn't the same around here without your inspiration and positive posts. :hug:
Kendra

AnnieB3 02-04-2010 05:53 PM

Erin, I'm glad things went well. I hope you can get off of the Pred and still be okay - well, be better really. Glad you have a new neuro too. Take it easy while you come off of the Pred, ok?

Annie

cricket001 02-07-2010 11:06 PM

Yuck! I am glad they worked you up from head to toe. I have heard good things about Mayo!

What a nice surprise about the flowers!!


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