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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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02-06-2010, 07:50 PM | #1 | |||
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Sorry...It's my fault that the conversation went down the shi**er! lol...I hope that nobody poo poos this convo.!
(P.S. Kinda a fan of poo jokes, guilty as charged lol) |
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"Thanks for this!" says: | Lily7 (01-30-2016) |
02-06-2010, 08:42 PM | #2 | ||
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Grand Magnate
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I was kidding, Nicky. I think more people should feel open to talk about this stuff. How else can you figure it out?
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02-06-2010, 08:47 PM | #3 | |||
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Don't worry, Annie, I totally know you were kidding...hehe...I was just looking for an excuse to throw in 'poo poo' lol...
*sigh* I'm so immature...lol |
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02-07-2010, 03:03 AM | #4 | ||
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Annie,
Those are some wonderful suggestions. I'm going to try every single one, one at a time. Except for the gluten, I already tried that one. I started on the south beach diet and at the same time cut out gluten for a couple of weeks. I've been feeling wonderful, although that's probably just because it was coinciding with me going into a beautiful remission. I've added gluten back and it doesn't seem to hurt. And the extra fiber in the south beach diet made me huge. I would love to figure this out. I actually used to be cute. Now half of my face falls down and I bloat up like a giant, blubbery thing. Ugh. I HATE it! I don't even want to go out of the house sometimes. Ally |
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02-07-2010, 04:05 AM | #5 | |||
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Member
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Bluesky, in France Mestinon is used in two cases: for myasthenia and to improve intestinal transit, the latter without prescription...
Maurice. |
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"Thanks for this!" says: | bluesky (02-07-2010) |
02-07-2010, 06:49 AM | #6 | |||
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Member
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Mestinon dosage to improve intestinal transit is 60 mg mornings and 60 mg evenings.
Maurice. |
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"Thanks for this!" says: | bluesky (02-07-2010) |
02-07-2010, 07:16 AM | #7 | |||
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Wisest Elder Ever
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Readers here on this thread may find this book interesting and helpful:
The Second Brain, by Dr. Michael Gershon: http://www.nytimes.com/2005/08/23/health/23gut.html Serotonin is really a major player in the activity of the gut.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | bluesky (02-07-2010) |
02-07-2010, 01:47 PM | #8 | ||
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OK, since you brought it up, I too had problems in this area and everyday after I eat, no matter what it is I bloat up so bad I too look pregnant but when I wake in the morning I am normal.
I have started adding Miralax in my morning coffee and can I say miracle wonder! I am so regular as long as I take it. I still bloat after eating anything (but I think that may have to do with my liver problem} but the miralax works and I am happy. And trust me I tried everything made and when my husband said to try it I laughed at him. Try it, I don't think it could hurt. Oh and I saw my gastro a couple months ago and he said everything was fine, no infection, no twisting, nothing... he couldn't understand the bloating unless it had to do with my liver problem, go figure |
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"Thanks for this!" says: | bluesky (02-07-2010) |
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