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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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02-10-2010, 10:11 PM | #1 | ||
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Junior Member
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Has anyone tried this for mg?
Thanks Janet |
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02-11-2010, 02:58 PM | #2 | ||
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Member
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I have not tried it, in fact I don't know what it is.
If you try it please let us know how it works. Wishing you the best. |
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02-13-2010, 09:05 PM | #3 | |||
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Member
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Hi Janet,
I posted something about this a while back after finding some things on the net about it...I've only ever come across one person with MG who tried it...It didn't do anything for their MG, but it improved their sleep. They had used it for a year. That person had the MuSk type of MG. I'm not sure if the antibody type would make a difference or not, but it could...Here's the thread I had started a bit ago...Not much info. there, but it's a little something... http://neurotalk.psychcentral.com/sh...ose+naltrexone Oh yeah...I asked my neurologist about the drug, and she seemed pretty interested in it...She hadn't heard of it before, though, either...(reason for edit) Nicky |
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02-21-2010, 12:27 PM | #4 | ||
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Junior Member
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Thanks Nicki, We're going to see his neurologist on Tuesday - it should be interesting, if nothing else.
Janet |
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02-21-2010, 12:46 PM | #5 | |||
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Wisest Elder Ever
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Here is a thread about LDN from the MS Forum. Many of us with Multiple Sclerosis are taking LDN with amazing results.
http://neurotalk.psychcentral.com/thread71392.html Here is a good link to an LDN website: http://www.lowdosenaltrexone.org/
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